Day 7, Second Round of patupilone

The side effects of patupilone are varied, but diarrhea 7-9 days after the infusion is considered normal.  Last time, I had diarrhea on all three days, but only in the morning.  The nurses have urged me to take the immodium at the first sign of diarrhea because it has shown itself to quickly get out of control.  That didn't happen last time and I am a stubborn old gal, so I waited.  There is a reason you have diarrhea, your body is trying to rid itself of something and I wanted to see what it would be like and what I could handle.  

So today, day 7 of the second round, I have had one visit to the bathroom, but no others.  I am currently drinking my fourth 16oz. glass of water for the day.  And although I am tired (fatigue is another symptom!) I feel pretty good.  The main problem I am having today is that I slept so poorly last night that I am exhausted from lack of sleep.  I napped for 45 minutes, but it was not a restful nap.  I am trying to pull my mind around the idea that this will be my existence for the next however many months I am on this drug and my numbers stay high.  

I heard from the hospital in Utica that my surgical records and pathology slides were sent to MDAnderson this afternoon, and that makes me happy.  We are one step closer to our second opinion. I know that my present onc is an excellent doctor, an expert on ovarian cancer and a very decent human being, but with my life on the line and the future of my family at stake, I owe it to my husband and children to make sure that all avenues have been investigated and my health is in the right hands.  

I have also made progress with my visualization and meditation.  I feel stronger emotionally and intellectually and am ready for the battle.  My diet is good, no more caffiene and more alkaline strong foods.  I have been offered more massage, accupuncture and reiki treatments and I know I can beat this.  All in all, things are good.  I like being alive still.  My kids make me laugh a lot everyday and my beautiful husband is the best man in the world.  

So Day 7 began slowly and is ending well.  Life is good.  I am still hopeful.