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All I can remember up until now.....

Apr 22, 2010 - 2 comments
Tags:

adnexal mass

,

Back pain

,

Bleeding

,

ovarian

,

Pain

,

test

,

Doctor

,

ultrasound

,

bowel

,

IBS



I am 27 years old. I have 3 daughters, 9, 6 and 3, all born by c-section. In the past 2 and a half years I have had an ovarian cyst removed form my left ovary and 2 hernia repairs.
Where I think what is going on now all started;
                                       In December 2008, my period was 2 weeks late so I did a home pregnancy test that was a faint positive. I did another 2 in the morning that were definitely positive. I brought some more, different brands just to be certain and they were all definitely positive. I had all the symptoms of pregnancy, swollen tender breasts, particularly sore nipples. I have 3 children so I knew  it wasn't just pre menstrual symptoms, and the 5 positive home pregnancy tests just confirmed it. I made a doctors appointment, but couldn't get in for 4 days. By the time I got to the doctor and had a blood test, he told me that I wasn't pregnant and that my HCG was only 11. I found this very hard to believe. I began having bad stabbing pain in the lower right abdo and it got bad enough to go to the E.R, I thought I may have had an ectopic pregnancy. They admitted me and did an ultrasound but it showed nothing. 2 days later I stated spotting very, very bright red blood, this came and went for about 6 days and then stopped. 3 weeks later I had extremely painful,heavy bleeding with lot's of clots and it lasted about 10 days. I don't really care what the doctor said, I knew I had miscarried, I have had one before as well. By June/July 2009 my periods went from being a 28-30 day cycle to about a 40-45 days cycle, the just gradually got longer every month. Starting around June/July 2009 they got heavier and more painful as well. I was having spotting, painful ovulation and sometimes 2 full periods a month. My stomach became very bloated and I felt very nauseous all the time. I stated taking the contraceptive pill again, but it just increased my constant lower back pain. I tried it 3 times, but every time I started taking it again, the back pain intensified.I knew it couldn't be a coincidence. By October 2009, it had got to the point where every month the pain was increasing. I had pain before and during my periods and also mid cycle, I had a little bit of relief for about 4 days after by period had finished, but there was still some pain there. Most days I felt like I was in labour, my stomach looked like I was about 7 months pregnant and I could literally see my stomach harder like contractions during labour. I went to my doctor and told him I thought I had an ovarian cyst, because of my pain, bloating and the irregular menstrual bleeding. He did a pelvic exam and thought so too so sent me for an ultrasound. There was nothing wrong and no cyst'/s seen. I went back to him because obviously something was going on and he sent me to a Gyno, the same one I saw for my ovarian cyst, but he didn't actually perform the surgery to remove it. The Gyno gave me a 3 second pelvic exam and told me he thinks my pain is from all my surgery's and that I should go back on the contraceptive pill for the irregular bleeding. I told him I had tried that and it made my back pain a lot worse and he said he will give me a different, low dose pill. He gave me the EXACT same pill! I wasn't impressed. I thought I'd try it anyway, see how I go. After a bout 2 months, as the pill wasn't making a difference and my pain was getting worse, I went back to my doctor. I told him about the Gyno and he didn't seem impressed. He told me that that in his experience, the Gyno that I saw doesn't really like to bother with things that may need further looking into. Basically, he just can't be bothered.It was not very comforting. He asked if I would like to see a different Gyno as there is one that comes form a bigger town once a month and she is very good or as I had a follow up appointment with the Gyno in 4 weeks, I could just wait for that. I decided to see a new Gyno but ends up that I would have to wait 6 months until an appointment was available. My doctor thought I may just have IBS,as I was having a lot of bowel pain, (mind you I had no other symptoms), so he gave me a script for Atrobel Forte, which it turns out they don't even make any more. You can just buy basically the same thing over the counter and he told me to drink peppermint tea and things like that to help my bowel. None of these things worked. My doctor also said to me at theis appointment that he feels that he can do nothing more for me as he is just a G.P and if nothing is helpful at the Gyno then I may just have to see a pain management specialist as there is properly nothing that can be done for me.I really don't think he had done enough to warrant saying this.Ok, so I went back to see the Gyno after 3 months, didn't get to actually see the same Gyno, but a training doctor instead. I was offered an IUD, but have never liked the idea if them so went with a different pill and Ponstan, which is a painkiller/anti-inflammatory that is supposed to work very well for period pain and told to come back in another 3 months for a review of how the new pill worked.The Ponstan didn't work for the pain and I took the new contraceptive pill for 2 days and instantly my nausea increased 10 fold, so I stopped taking it. It is now March 2010 and the pain has become constant. I would compare the lower back pain to having someone hit my tail bone with a sledge hammer and the pain runs don my legs, sometimes I have weakness and tingling in the legs. My stomach is very bloated and sometimes stretched and hard like I am pregnant. I have lost a few kilos but have gone up 2 pants sizes because of the bigger stomach. The pain I have in the lower stomach is sometimes like bowel pain when you are constipated or have diarrhoea. Sometimes it is stabbing pain in the lower left and/or right side around where the ovaries are. This also feels like the pain I had with my hernias. I liken it to having a very,very sharp thin needle pushed into your stomach.Sometimes the pain is just like intense labour pain. I may have these pains separately or sometimes all at once. I think the worst is the lower back pain as I can never find any relief form it and the stabbing pain in the lower abdo just comes about of nowhere and just drops me to the floor. I usually can't get up for a while as it just intensifies the pain if I move. I then stated having intense episode of pain around the kidney area. I have been told about kidney stone pain and I would definitely say this was the same thing, I thought maybe that was what was wrong with me. I have had this pain before but not as bad and did tell my doctor but he never thought it was of any concern, but by now it was really bad. I had an episode of pain and then what looked like blood in my urine. Seeming the doctor I had been seeing didn't seem much help I just got in with the first doctor that was available. Well, thank God that I did! :)He was quite concerned that this had been going on for so long and nothing much was being done about it, especially considering I was in so much pain all the time. He did a urine test which was fine and sent me for an ultrasound. He called me back in the next day and said I have a 4 cm left complex adnexa mass. My report shows that my right ovary is 8.1 cc and my left ovary is 60cc! The mass isn't actually on or in the over or fallopian tube. He said I could wait 4-6 and have a review ultrasound or I could see a Gyno instead of waiting. I said I wasn't happy with the Gyno I had been seeing so got a referral for the new Gyno that my previous doctor had suggested, but I couldn't get into see her for 4 months so I goggled around and found a doctor that comes to a town close to us once a week and he is supposed to be very good. I am currently waiting to see him in 2 weeks and a having another ultrasound in 1 week so I have updated scan for him to look at. My pain is still getting worse by the day and the next 2 weeks is going to feel like forever.

Comments
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by Mommy2584, Jun 17, 2010
I am so sorry that you are going through all that. I can relate to you as I have a dr that seems to shrug my same symptoms off as IBS and thought I came in for pain meds. I demanded an Ultrasound and I am waiting on my ultrasound and transvaginal us results that I had done yesterday. My pain has increased and I too am frustrated beyond belief because I know that something is not right. I am 26yrs old with two girls usually I shrug things off but this time I cant the pain is so excrusiating and it too radiates in my leg. I hope everything gets worked out for you and please update us.

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by emsquishi, Jun 19, 2010
Hi, I have written more journals since the is one with updates of what has been going on since I saw the new Gyno. I hope your results come back of and if not I hope that you can find a good doctor that helps and understands. That is one lesson I have learned though all of this, it is hard to find a good doctor. Particularly when if it comes to female problems. So many of them just brush it off and think we are concerned about nothing or just being dramatic. There is so much emphasis now a days on the importants of finding ovarian cancer in its early stages and that it can be hard to diagnose as it has similar symptoms to many other things. We are told not to ignore symptoms and see a doctor just in case, but so many doctors still wont listen. It is very frustrating. Good luck to you and I hope to hear from you about your results. Take care. :)

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