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The Dismissive Neurologist Dilemma

Jul 24, 2008 03:01PM - 2 comments

I read a thread that Quix started on bad experiences with neurologists and decided to reply.  Unfortunately my post was so far down the list that no one will probably read it and I did want to keep it as part of my own record of experiences since I am still new to this type of physical problem for future reference.  I copied and pasted my response below.

A friend of mine who works in the medical field recently told me that her experiences working with different neurologists throughout her career is that they are a "special breed".  She said they tend to be like surgeons or some other specialty of doctors that I can't recall in that they are odd and usually have lots of patient complaints.  My friend used to work as a patient advocate for a large medical/hospital conglomerate where complaints about doctors are quite common.  What types of doctors were in the top 3 highest categories for complaints (according to her hospital) you might ask - Neurologists!  

I am still new to this area of medicine having only needed to be a patient of a neurologist for 2 months so far, and my bad experiences started while still in the hospital.  My neurologist stopped coming to see him after a few days (was in hospital 22 days) and didn't even come to see me on the day of my discharge.  I was so upset leaving the hospital after such a long stay without most importantly a discussion on a possible diagnosis, no follow-up instructions, or anything.  The hospital internist was upset too and told me he was embarrassed about this doctor.  So, I am now venturing into to the unknown with these "special breeds" of doctors and have already learned much from all of the entries on this subject from you all.  I will keep my chin up and handle these future encounters, if bad, by knowing that I am certainly not alone.  

Let's hope each and everyone one of us will find that gem of a doctor who will finally help us move toward a diagnosis or at the least not dismiss us.

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by Alli78, Aug 17, 2008 05:50PM
My neuroloigist was not as dismissive as vague, calling it a clinically isolated syndrome with a negative MRI.  He said is should last about 3 months, but without a specific diagnosis, there will be no treatment.  I have never cried in a doctors office, until he said we will do a repeat MRI in 6 months and let's just wait and see.     AAAHHH!  I can barely get out of bed some days, I feel like a terrible mother.  I have numbness and pain throughout with loss of feeling in the left side of my face and constant parathesias.  There are days when I am so weak I have no idea how I will get through.  just "muddle through"  I can't treat you.  It's insane, in this day and age.

by Sarahsmom46, Aug 17, 2008 10:08PM
Hello Alli,

If you are new to our group, let me say "Welcome".  

Thank you for your comment regarding neurologists. How did this all start for you?  I am so curious about your condition as it sounds similar to mine in that the doctor is claiming that I also had a clinically isolated syndrome and that it should be cleared up within 3 months or so.  Well, I am going on 4 months now.  So much for his prediction.  Did your symptoms come on all of a sudden or over a period of time?  It sure sounds a lot like MS, without the MRI lesions, but very suspicious.  I'm sure that our house doctor, Quix, will help you with what to do next.  She has been very helpful for me in dealing with neurologists and telling me exactly what to say to them to get help.  Hang in there until we can help you figure this out.  

For the time being, know that you are in the right place to get support and great information.  And again, welcome.

Julie

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