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Tardive Dysphrenia, Tardive Psychosis, Tardive Dysmentia Recovery Approaches Society. Not Being Able to Speak is Not the Same as Not Wanting to Be Listened To

Apr 27, 2010 - 3 comments
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Tardive Psychosis

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Tardive Dysphrenia

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Tardive Dysmentia

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tardive dyskinesia

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Tardive Dystonia

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Tardive Tourretism

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Tardive Myoclonus

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Tardive Akathesia

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glycine

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NMDA Receptor Modulates

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Schizoaffective disorder

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Disability Acceptance

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Disability Accomod



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Its important to remember that I have dealt with any of my disabilities, psychiatric and now neurological in a rational way seeking treatment so I could recovery and accommodations for what I needed and was unable to (in order to remain a part of the community). I have had positive results with the providers I have dealt with. Unfortunately society has not always been that accepting. In the past it was complicated, Before recovery I would act psychotic and of course it is hard for anyone (especially when that's extreme) to deal with that. The difficulty is now the limitations are physical and factual. But sometimes people can't see them that way. Being that I have marked dysphagia and can hardly speak I use a TTY instead of a phone. But unfortunately another friendship dead ended (note there were no disagreements or conflicts at any time) because of the TTY itself. The call ended "Maybe we can have an actual conversation when you are over your problems". Let's stop there. A TTY conversation is a real conversation. I've called many people who were deaf or hard of hearing. That's an accommodation that enables a person to communicate. Some people I know accepted the TTY right away. Some people took some time to get used to it. Others couldn't. But all the time I physically needed it. And I made sure to keep in touch with people at all times. .
   As for what else is going on, its clinically complex. There are neurological changes I have affecting thought processing, mood, cognition and many other aspects of how I process the world. But yet mentally I am rational. The reason I know (and this is being clinically understood in this manner) is that these changes only occur during convulsive activity. Anyone would know what a seizure was. So the best way to react to these changes is as one does to a seizure (being that its not controllable and its neurological). So for myself what I am looking at is an unknown level of mental recovery and some neurological deficits under clinical study. I can explain the accommodations I need and they would all be defined as "reasonable accommodations" (very specific concept within the ADA) but people have to be willing to listen. And yes before recovery there were people I alienated when I was psychotic. That's different. This isn't a "problem", its a physical disability and depending on physical recovery rates I may never "get over it". And as for people with clinically known neurological disabilities, strokes, TBI's, Parkinson's, multiple sclerosis, Alzheimer's, whatever disability happens to someone you know, they are still your friend. Don't abandon them. In fact this is the time they need you most. When the main issue was psychiatric people encouraged me to stay in treatment. They were right. Now they just need to support me with a recovery as yet hard to define but once known may very well benefit others (as researchers begin to understand it). I accept who I am. I work with providers to define my accommodations. And in order to remain a part of society other people need to stop and think of what they are doing. I am the same person. And I will always be their friend. A TTY is a form of assistive technology. Learn what it means. Because you may find someone else in the same situation and although they cannot speak like everyone else they need very much to be listened to.

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by shay69, Apr 28, 2010
I think your great and well educated and very active in your own role of recovery! I give u mad props! We all need support and understanding when dealing with are disability's weather they be physical or mental and some just cant accept mental disability's as they can one they clearly understand by sight. Your friend may come around may not but I'm sure there will always be alot of support for you here as your always here for us and its greatly appreciated I must say that I really enjoy reading everything you post and follow you where ever you post. Hang in there I'm here for you if you need anything although I don't know how much I can help but provide a good ear and a little mania right now (ongoing joke with me sorry) Here it is 1:22 and I have to get up for work at 5:30 and feel pretty manicy didnt sleep yesterday hardly and hurt everywhere and don't think job is understanding of my disability either In fact I was told it was all in my mind lmao it is I say dumba**'s duh! Sorry again I talk alot whenever I'm manic and avoid social things as much a poss, when not so I talk a lot right now but that liable to change anytime and revert back anytime. And again I really enjoy reading all your posts! Shay aka Missy

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by ILADVOCATE, Apr 28, 2010
Thanks. That's a good point. Sometimes it takes time for people to get used to a person acquiring a new disability that they are not familiar with or can appear disfiguring at times (as I appear in person) and of course as a TTY is a public relay system it can be uncomfortable for some people to have what appears to be a public conversation (although it should be noted any operators working on any relay call must follow strict confidentiality regulations). The person I know has their own recovery issues and did not say that they were ending the friendship but that they couldn't handle this form of communication so I should give them some time. Some people I know who were uncomforable or unable to address what was going on with me at first in time were able to change their perspective. So much as people should consider the needs and physical limitations of my disability I should consider there's as well. For the people I know well in my life best its a reciprocal process of being supportive of each other which is the way it should be ideally.

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by shay69, Apr 28, 2010
lov the way u think and talk :)

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