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No more antibody attacks on a gluten-free diet.

May 14, 2010 - 10 comments
Tags:

Hashimoto

,

gluten

,

treatment

,

leaky gut

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Thyroid

,

Hypothyroidism

,

dr kharrazian

,

Hashimoto's

,

adrenal fatigue



Well, three months after giving up gluten and I am now down from 150 Synthroid and 10 Cytomel to 112 Synthroid and 2.5 Cytomel and my neck swelling and antibody attacks are gone. Just pop over to my profile pics and look at my neck.

In February, I was maxed out on thyroid hormone and my labs were in the upper 1/3. I was feeling okay, despite fatigue and stomach pain.

I've always struggled with IBS and bloating, ever since childhood, I can remember my mom loading me up on prune juice.

After reading Dr. Datis Kharrazian's book at:

www.thyroidbook.com

everything about my life fell into place. He blames Hashimoto's on gluten intolerance. Even though I tested negative for Celiac, and many Hashis will not test positive, he says we still are intolerant. After years of eating gluten, it wears down the lining of the gut and seeps into the bloodstream. Antibodies attack the foreign substance. Because the thyroid resembles the molecular structure of gluten, our poor innocent thyroids are eventually attacked by the antibodies. Thus, Hashimoto's is born.

Makes perfect sense.

So I've been gluten free for three months. My lumpy little ball of Swiss cheese that used to be a beautiful pink butterfly is finally working again. I need less hormone. My stomach pain is all but gone. Except for today. I experimented with raw cashews, wondering if they had caused my stomach upset a few weeks ago. Yep. It's the cashews. Note to self. Don't be so stupid. Stay away from cashews and all tree nuts in general.

I am now seeing a doctor who trained under Dr. K. His name is Charles Webb at Imagine Wellness in San Antonio. He and his team of doctors follow Dr. K's protocol with the 21 day gut detox. Hopefully, my gut will heal after years of eating the wrong foods. I'm on day eight. I sure hope those cashews don't impede my progress.

I am feeling better than I've felt in years. Dr. Webb believes in five components of health: nervous system, spine, exercise, eating healthy and gut detox. Once all three are complete, I should be feeling much better.

We are working on reducing yeast in my gut - another common problem with us Hashis. Ever get oral thrush or yeast infections? I bet your leaky gut was the source. Here's a good site on leaky gut syndrome.

http://www.leakygut.co.uk/

Another reason I believe Hashis have gluten intolerance and sometimes even other foods such as nuts, corn, dairy, soy and sugar.

I am awaiting on my adrenal test results. Dr. Webb believes that the 24 hour saliva test is the only reliable method for testing adrenals because cortisol levels fluctuate throughout the day, you need several samples, not just one blood cortisol test. Why don't most endos test and treat adrenals when adrenal fatigue almost always accompanies low thyroid function? If my adrenal tests confirm that I am indeed low, he will start me on natural, not steroid,  adrenal therapy.

I'm feeling well enough to lift weights again. Strength training is part of Dr. Webb's program. I used to be very fit and healthy and I'm hoping for another chance at good health.

Giving up gluten is a small price to pay. Eating the right foods is a small price to pay.  I just want my health, so I can be a good mommy and wife again.

As I write this, I am periodically annoyed by a distinct ringing in my ears - another sign of hyperthyroidism. Do I need to cut back on my thyroid meds again? I will have to call my endo next week and schedule another blood draw. So far, he's pleased that I'm using less hormone, but he didn't seem interested in hearing what I had to say about Dr. K.'s book. He's a good doctor, and I respect him, but I fear getting most endos on board with this new method of treating Hashimoto's will be challenging.

:) Tamra



Comments
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by eannashleysmith, May 15, 2010
i bought dr k's book. just started reading it and im glad your feeling better. i hope that once i finish the book and start on some of ideas, that i too, will feel better. im 31 but feel like crap all the time...its depressing

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by Smilerdeb, May 15, 2010
I have ear ringing when TSH is UP so get your labs done...
Good luck and good to hear you are feeling better :)

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by TamraW, May 15, 2010
Smilerdeb, I've never had hypo ear ringing, but I've heard of others who do. Also, I've had lose stools, stomach cramps, hot flashes, unable to sleep, heart palps, shaky hands...

I broke out my old bottle of 112 and replaced them with my 125. I will call my endo next week and ask for more labs.

Thanks!
:) Tamra

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by TamraW, May 15, 2010
Eanna, you will get there. Don't give up.
:) Tamra

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by sethw74, May 20, 2010
Celiac is such a scary disease cause so often you hear about it not being diagnosis until years after a problems start.  Or worse yet, testing negative for celiac only later to find you have it.  So its tough to diagnosis AND it can cause almost any problem known to man it seems.... scary.

I hope the best of luck to you and hope this is the root cause of your problems.  It is wonderful when problems have solutions.

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by TamraW, May 20, 2010
Seth, I'm not sure if I am a Celiac. I very well could be, but people with Hashimoto's should also avoid gluten as it resembles the molecular structure of the thyroid gland and antibodies attack the thyroid because they mistake it for gluten.
:) Tamra

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by JackietheArtsy, Jun 10, 2010
Ringing in ears can also be an allergic reaction. I have Hashi too, but I've noticed when my allergies are acting up the ringing shows up...didn't know this till I saw an allergist. Tamra, your posts have really enlightened me. I've been going to a chiro for a couple years now, which has helped things, but I did need an increase in synthroid a couple months ago from 150 to 175 because of skipping cycles.

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by MKB_Thyroid, Oct 19, 2010
Dear Tamra,
Thanks for the information. I have decided to be on a gluten free diet. Could you tell me what foods did you eat and what you avoided for this diet ?

Mamta

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by TamraW, Oct 19, 2010
There's a lot I don't eat. I'm a TH1 dominant, so I avoid mushrooms. I avoid shrimp and high iodine foods because, for me, iodine made my swelling worse. I avoid gluten in all forms. I avoid soy, because soy is an endocrine disruptor, but occasionally I will have gluten free San J teriyaki sauce or a gluten free dish at PF Changs. I quit eating gluten free oats for breakfast and opt for bacon and eggs. Actually, with the exception of a few cheating episodes, I'm eating Paleo. Google Paleo to see more about it. Sometimes, I get the urge for a piece of cake. Bob's Red Mill has awesome gf mixes, but I need to lose some of this weight. My thyroid levels dropped very low this summer. I was feeling so great, I didn't even notice until after I got on the scale. If you look up gluten intolerance group, you can find a local chapter in your city. I belong to my Texas Chapter, Alamo Celiac. Even though I am not confirmed Celiac, they welcome all people who have to give up gluten. These people can give you guidebooks and my chapter offers classes on how to gluten proof your house.

I have been GF since February. Last Friday I went to Chilis and ordered their gf chicken salad. I asked for the balsamic vinagarette. They gave me one little cup of it. I asked for another half-way through my salad. She brings me a dressing that looks like it, but after one bite, I realize it's a different dressing. I get the manager and ask what's in the dressing. The manager goes and looks up the contents. By the time she comes back to my table, I have red welts on my arms and chest and my neck is swollen. My mom is panicking beside me. Telling me she can see my neck swelling. It's my thyroid. I can feel it choking me, but worse was the rash on my arms which felt like I was burning inside my skin. It went away after about three hours. My chiropractor gave me some stuff yesterday called GlutenFlam, not meant so you can eat gluten, but it eases the symptoms. Google it. I think they sell it online. I will keep it in my purse from now on just in case this ever happens again.  The one good thing in all this is that my mom, who has not fully supported my decision to go gf, can now see what gluten does to me. She had seen these same antibody attacks before, back in January when I was eating gluten, but she wasn't entirely convinced that going gf was what caused my attacks to stop. Maybe, like so many others here and doctors as well, she figured my thyroid levels were high enough that the attacks finally stopped.

:) Tamra

:) Tamra

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by TamraW, Oct 19, 2010
Also, I don't eat yellow corn. That stuff really makes me sick. For many people with gluten issues, yellow corn is an issue as well. Blue corn is okay. :) T.

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