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Frustration With Doctors

May 17, 2010 - 1 comments
Tags:

endometriosis

,

endometrioma

,

Cyst

,

laparotomy

,

Pain

,

stress

,

diverticulum



About two months ago I started having severe pains in my left lower pelvic region. I had no idea what the cause of this pain was, but I knew it wasn't something to be ignored given how severe it was getting. I told my mother to schedule me an appointment to go to my primary physician to see what's up. ( I urged my mother to do this because I'm only 19 and still don't quite feel comfortable doing things like this on my own. )  Anyways, she sort of blew me off for a couple of weeks because she thought i was just complaining about something common.But It got bad enough to where I was being kept up ALL night by excrutiating pain. I was losing my mind due to lack of sleep I think. I would sometimes vomit when it got bad enough. I was losing my apetite completely and rarely had a bowel movement. I finally got into the Doctors office after a couple of weeks of exhaustion. He told me that he thought I was constipated and that's what was causing the pain. So he tells me to go buy some powder fiber and take it three times a day. I did so and that didn't work. Next he tells me to do an enema because he's convinced that It's still just bowel issues when I KNEW my pain wasn't caused by my bowels. It felt like the pain was coming from where my left ovary would be. The enema didn't work either so he says do a ct scan. We do the ct scan and all that's found is fluid filling my pelvic cavity. After the ct scan we do an ultrasound, both internal and external. The ultrasound Tech said she thought it looked like an ovarian cyst the size of a grapefruit, but the radiologist reads the prints and says that it's not a cyst but a bladder diverticulum. so I'm reffered to a urologist. I go to the urologist and have a cystocopy done to determine whether I have intersitial cystitis because the urologist believes that the "diverticulum" is not a concern but he thinks the pain is being caused by interstitial cystitis. The cystocopy reveals that it is not a diverticulum but in fact some sort of cyst outside of the bladder like the ultrasound tech had said before. Given that the pain isn't being cause by urinary problems the urologist referrs me to an Ob/Gyn. I went to the Ob/Gyn a couple of days ago and she does another ultrasound so that she can see for herself what's in there. She comes to the conclusion that it's an endometrioma caused by sever endometriosis. She seemed concerned about my ability to have children in the future and immediately calls a friend of hers who is an endometriosis and fertitity specialist. She sets up an appointment with him for me on May18. She believes I will have to have a laparotomy given the size of the "endometrioma". I'm nervous. I'm phobic of needles and anything having to do with medical tests. Hope I don't lose it before this is all over with.

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by ska4life1986, May 17, 2010
hi and welcome to the forum,you will get good advice and support here from woman who had the same experince ,i dident have endometriosis so i cant help you with that i had a dermoid cyst the size of an orange that ruptured and caused my fa llopin tube to knot and the blood supply was cut off to ovary and i lost tube and ovary,my brother had a bowel diverticulum its first time since i heard of it since its very rare ,i hope all will turn out well for you if you post a commet on the forum some that had it might help you best of luck x

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