May 31, 2010
my sister's in the annual fundRaisg walk for a cure for ms and wouldn't it be good if there was eve a walk for awareness of fatig syndrome. but well, we can't organize it. so frustrated. if we had a sit-athon we would be good to go for research and well, not sure about a cure ... prob just dicouraged. but so disappoined an bit upset that my sister like everyone else will walk for ms and that there isn't an equivalent for f. s. , and would anyone walk it if there was one or more to the point, would 'she'?
we just lie down a lot and people don't understand - we're not doing it for fun!
so sad n hurt