Jun 30, 2010
I took Whitney to the pediatrician yesterday because her chest/heart/lungs hurt and she was just plain feeling worse. And since I was sick, I wanted to make sure she wasn't getting something too. Good news is that she doesn't appear to have anything I might have. Bad news is that she said the neuropathy/dysautonomia is making her hurt there. The nerves in her lungs or chest wall are probably misfiring or hypersensitive. Nothing she could do, but to call the neurologist today. Stay the course of the nortriptyline increase set for tonight. But she did give me a prescription of tylenol with codiene if it gets really bad and we can't get her to sleep any other way - but to hold off for a few days after the nortrityline increase to give it a chance.
So last night Whitney was in terrible pain. Electrocuting feelings from her chin down through her fingers and down through her chest. Oh she cried. It is just the most horrible thing to hear your child cry for help and you can only hold them. Why aren't these medications working? Why did this happen in the first place? She woke up at 5 this morning saying her throat felt like there was a lump in it. Her throat wasn't red or anything (I don't have a sore throat either). I gave her some water to drink, that didn't help. She asked for something to eat to maybe get it down, so I gave her a tortilla (her request) and she ate that and drank some more. She said it felt a little better and then she went to sleep. She is still sleeping. I have to wake her up soon to eat before physical therapy which I am sure she is not going to want to do, but I am going to try to encourage it...but not going to push it.