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END STAGES OF COPD

Aug 09, 2008 - 5 comments
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end stage

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copd



I WOULD LIKE ANY FEEDBACK AVAILABLE AS TO WHAT TO EXPECT IN THE LAST STAGES.I AM IN THE LAST STAGES.AND IF I MAKE IT WILL BE ON THE LIST FOR A LUNG AND POSSIBLE HEART TRANSPLANT.I WOULD REALLY LIKE TO KNOW WHAT TO EXPECT.MY DR.HAS GIVEN ME A YR.TO LIVE,BUT SAYS I CAN LAST UP TO 4YRS.I HAVE HAD ONE VERY CLOSE ENCOUNTER.I JUST WANT TO KNOW SO I CAN PREPARE MYSELF.YES,MY DR.WILL TELL ME,BUT I DON'T GO BACK FOR A MONTH AND WOULD LIKE TO KNOW NOW......

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by DALLAS777, Nov 15, 2008
I SURE AM SORRY TO HEAR THIS,MY AUNT IS ALSO,AND I AM TRYING TO FIND OUT THE SAME.


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by lester3, Jul 07, 2009
i would like to know what causes the grunting noise of some copd patient. Is there anything you can do to help ease the noise, and help the patient relax

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by Allathy, Sep 20, 2010
I'm at "end stage" COPD. I was originally diagnosed when I was 39 years old (with stage 4). I'm now 56 years old and it's really caught up with me. I do qualify for a lung transplant but the mortality rate is so high and the incident of other life changing diseases is so great that I opted to deal with this disease vs any more surprises. I know that I get very down and I'm being treated for depression. It is so difficult to breath that when I do try to exercice I don't last long at all. When I start gasping for breath (which happens really fast...within the first 2 min or less) that's the end of the exercise. Most nights I don't sleep well. I wake up because I'm having trouble breathing so I do a treatment with the nebulizer then I can't get back to sleep because the medicine gives me the jitters.I have no desire to go and do anything because it will cause my breathing to become very rapiid and gasping. When I get to the point that I'm gasping for breath it feels as if I'm suffocating and my anxiety level sky rockets which in-turn affects my control (or lack there of) of breathing. There are times I don't even want to get out of bed because just getting to the kitchen is such a big deal...the gasping...anxiety etc, etc. On the rare occasion that I do venture out it's usually with my sister or husband. I have an electric scooter so I can do some shopping or looking around. The problem with this is.........why bother? I'm not going to be around to wrap gifts for Christmas or to wear a new outfit. Or, according to my Doc, I might be around. You just never know. I know I need a giant attitude makeover and I'm trying but.....to what end?
So, this is how it has been going for me at end stage. I hear everyone is different. I wish I could be more helpful in what to expect.
Allison

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by souped57, Jun 25, 2012
I too am living with end stage emphysema and C.O.P.D. It is very hard to live most days.For the longest time I considered suicide but did not want to do that to my family. I feel tremendous guilt that I can't do the things with my family especially my grandchildren that I once did. They do not understand that I am so sick or why most days I can't get out of bed. I had a bout of pneumonia last year that nearly took me out but somehow I hung in there. I remember lying on the sofa so weak that I couldn't even raise my head off the pillow without choking and gasping for air.I pray constantly and reminisce about the days of old when I was up and around cleaning and gardening, fishing and camping out. This has been very hard on my husband since he works full time and has the responsibility of everything including grocery shopping. I spent many days praying to die and feeling sorry for myself. It was when I was getting over the last bout of pneumonia that I realized that I have never been a quitter and as long as I could crawl I am going to make the best of the time I have left.I practically did crawl to the kitchen and got a bottle of Gator Aid and drank the whole thing. Then I went outside and started watching the wildlife that come out very early in the mornings. This has been an inspiration for me for birds, squirrels and rabbits know not what they will eat from one moment to the next yet they live life to the fullest as I plan to do. I will not be going to the hospital unless I am unaware of it during my last hours since you catch more diseases there than any place especially with these lung diseases leaving your immune system so weak.I still have days of feeling sorry for myself but they are not as many as they once were and as long as I am able to crawl I will make the best of the time that I have left. None of us know the state that we will be in in this life we can be fine one day and very sick or maimed the next.I am 55 and whenever I feel sorry for myself now I think of the very young children with cancer and terminal illnesses and I thank god that he has given me time to prepare my family to some degree and that I am not one of the parents with a terminally ill child.GOD IS VERY POWERFUL and I will put my trust in him and enjoy whatever time I have left and pray that my end will come in my sleep.I sympathize with anyone living this nightmare and know first hand how depressing it makes you.Only someone with these diseases emphysema and C.O.P.D. can fully understand what you are going through for it is terrible and if they have never lived it then they can't possibly understand it.It is a scary feeling to be trying to walk and lose your breath and gasp for a breath of air.It is equally scary to bend over and lose your breath to the point that you're not able to straighten back up.I pray that god looks down on everyone with these diseases and helps them as they struggle every both mentally and physically when they have these diseases.I try to get as much exercise as I possibly can and by this I mean walking outside or through the house as much as possible. May god bless all of you that are sick and give you some good days as you continue to struggle with this very debilitating disease.

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by camerorhonda, Jun 16, 2013
I too myself have stage 4 COPD, and I get very depressed, because I remember being able to go out with friends and go dancing, ect, going to grocery store, and parks, now I am 46 years old and my lungs have gotten worse, I am out of breath when I even go to the car or clean house, especially when I try to run the vaccum cleaner, I used to work, but the copd took over and now I can't even do that, I get very depressed when all my friends are at work, and that I am on dissability, I hate life and thought of suicide, but then I met this man whom accepted me with the deadly disease and I married him, because I knew I would not find anyone that coud not handle this disease, do I love him yes, but in love no, I hate what this disease has done to me, there is nothing like feeilng worthless, especially when you have to get a handicapp for you car. and people look at you wondering, well she dont look sick, I dont wish this diesease on my worst enemy, Just wondering what could happen next after the stage 4 copd, I had went to cleaveland clinic once before and they ran a bunch of tes, and told me that I was not bad enough that was back in 2010, and now my doctor ran another PFT and it the lady that did the test said the the test showed not a real big chang from last test, only a slight worse. so I ask myself why, I had followed everything that the doctor told me what to do, so at times I feel like just giving up. I used to be on oxygen 100 % of the time, but went thru pulmonary rehab and now not on oxygen, only as needed. So my question is this, I live in  Ohio, where is the best place to live for COPD sufferers?

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