Jul 07, 2010
I officially have been diagnosed with POTS, but not yet with CFS. I may or may not have CFS depending on what country's definition is used. At the end I think it is a matter of semantics, since officially "having CFS" doesn't get me any further toward understanding the cause of my symptoms.
I have been reading a lot about mitochondrial disorders since I don't know what else would cause me to have to sleep 3 days simply because I weight-lifted and ran on an elliptical machine for 15 minutes.
Here are a few links I am finding helpful:
http://www.umdf.org/site/c.otJVJ7MMIqE/b.5692901/k.E911/Recommended_Reading.htm- Great papers by doctors who specialize in mitochondrial disorders.
http://www.prohealth.com/fibromyalgia/blog/boardDetail.cfm?id=1222143 - Some thoughts on post-exertional malaise and mitochondria
http://www.forums.aboutmecfs.org/showthread.php?2573-CFS-mitochondrial-diease-autism/ - Thread on mitochondrial and CFS
My next steps are to either convince my doctor to give me some level I and II tests described in the mitochondrial cytopathies papers or do some of the tests on my own.