Aug 12, 2008
If anyone wants to know my story I am on glycine, a glutamate antagonist. It is in FDA study in Phase II and part of a new class of medications that unlike the current anti-psychotics don't cause tardive dyskanesia or diabetes and are much more effective. I have had a full recovery. I am working with my psychiatrist to advocate within the system to get these new medications out. If someone is unfamiliar with these medications feel free to e-mail me. The difficult yI have now is extreme forms of tardive dyskanesia. I take muscle relexants for it as I could not tolerate the anti-Parkinson's medications (and couldn't tolerate Clozaril which also was unhelpful to me) and they are not very effective. I am on a natural remedy also in FDA study called rhodiola which has been of great help. But all of these medications are activating and with the severe effects of the tardive conditions such as full body spasms I am homebound so I telecommute to earn enough money to keep the Medicaid Buy In for Working People with Disabilities. However, I also advocate for people with disabilities in general areas such as benefits applications and appeals. I assist people within a certain area near me in person but I can provide information to anyone. Right now my primary concern is learning how to cope with the severe physical disability and use the increased mental functioning and I"m doing well. I just have to build up some weight as the tardive akathesia and other variants of the motor disorders causing me to remain in motion as well as the activating effects of the medications have caused weight loss. I've moved beyond the aspect of "recovery" of mentally recovering but there is the physical recovery but right now what's more important to me is to advocate and help others so if anyone reads this and wants to more information send me a message.