Jan 05, 2008
Its a long story so I thought I would post about it for anyone interested in what it actually means. : ) And I get tired of typing so much! Here it goes....
Gastroparesis basically means that my stomach is paralyzed. Its classified as "sever delayed gastric emptying". I basically live my life nauseated, vomitting, and in pain. Gastroparesis is usually associated with people who have diabeties, but mine is idiopathic (the theory is it MAY have been caused by my first pregnancy with my son). There is no cure for gp, just two options: feeding tubes or a gastric pacemaker (I've had both). Before I got the pacer I vomitted around 16-18 times a day, now on a good day...maybe 5-6 times a day (even when I'm not pregnant). Thats a drastic improvement, so thankfully I no longer have the feeding tubes (I had both a G and a J tube).
The gastric pacer is a great device, but I must say it was so hard to get! There are only a handfull of specialist on gp in this country, thankfully I was able to find one locally. The pacer cost about $41,000.00 and that needed to be paid in cash up frount before they would even touch me! It was not covered by insurance because it was "experimental", used in under 4,000 people a year. I went to the makers of the device and told them my story, they said they would donate it to me for free, IF my doctors would donate their time. My doctor wouldn't help me. I opened up an account for donations, and fought really hard to get my story in the newspaper and on the news here. It took me a year, but I got my money, thanks to the Lord! I got my pacer on May 4, 2006. Its helped me so much, but it didn't end here...
I spend a lot of time in the ER. Last Febuary I spent 22 days of the month in the ER, sometimes waiting up to 12 hours just to get to the back, not even seeing a doctor yet. They got really tired of seeing me. People can go in with broken arms and they can fix that. My condition is chronic and all they can do is treat the symptoms. I was starting to get labled a "druggie", so my doctors decided to give me a chem-port. Its basically a device they implanted on my upper chest, they acess it with a needle, and I can give my own medications at home. I have home health, so they change the needle for me once a week. I usually hang about 3 bag of iv. fluids in a 24 hour period, I hang a bag of 10 mg Zofran every 6 hours, and inject 50 mg of Phenergan every 4 hours. All of that and I still feel sick!
I have my good days and my bad days. If I don't ever get back to anyone right away, please don't take it personally, but I'm probably just not feeling well.
: ) Thats my "sick girl" story, hope that can let you all in on a bit about me. Thanks for listening, ever have any questions..feel free to ask!