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Crohns and the Pain of it all

Aug 20, 2008 - 1 comments
Tags:

Crohns

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Crohns disease

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abdominal pain

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dispair

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depressed

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Research



I am so tired of all of this pain.  Every time I turn around, I'm either gaining alot of weight or loosing alot of weight.  I am constantly going to the restroom, and I either have alot of blood in my stool or a strange mossy tinge to it.  I sometimes think that I am the king of diseases that are somewhat difficult to diagnose.  Well, maybe not, but after being diagnosed with Cushings, Crohns Ileitis, and a genetic form of gout.  Between the three, it is pushing my kidney's and liver to the brink, and since I have Cushings and other issues, 2/3'rds of the medications for Crohns have such a strong reaction that I am almost hospitalized.

AAAARRRGGGHHHH, I am so tired of this, however, all I have to do is read some of the posts here and realize that there are others that experience the same fear that I have.  I can empathize with these users, and pray everyday for the good work to continue with the Crohns research.  i am currently on Cimzia and Pentasa, as well as tramadol and dicyclomine for the other pain and inflamation, which doesn't seem to do that bad in making some of the symptoms more tolerable.  i am not saying that it's all that easy to deal with the symptoms, since I seem to live in the restroom and can't eat anything with flavor.  

One thing that I can see and feel through all of this allows me to see exactly how every system and organ are tied to each other, and just a little change can throw everything out of whack.  Along with the physical aspects of these diseases, i can see the psychological impacts as well.  Dopamine can be a good and bad friend, as the more or less can dictate exactly how much your body can handle the pain.  Antidepressants and other medication can and does do a good job in assisting others with the other desires to maintain and control their diseases, however, I'm allergic to most of these medication, so oh well.

Anyway, I know that I need to keep plugging along, because I have 5 people that depend on my and my contributions to our family.  Wish me luck.

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by CakeisgoodFrostingisbetter, Mar 01, 2011
i know this post is older and you're probably feeing better by now.  I was going to suggest looking into LDN low dose naltrexone.  It's hard to get, but possile and it works for autoimmune diseases.  JUst a suggestion for you.  This med doesn't have half the side effects of the strong biologic drugs and is WAYYY cheaper.  

Take care

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