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Wanted: Moms and Kids dealing with Autism

Aug 23, 2008 09:59PM - 4 comments
Tags:

autism

,

kid

,

mom

,

and kids

,

testing

,

autistic spectrim

,

autism advocate



My son is 9 yrs old and has PDD/NOS. I am looking to meet other parents who are going thru this. I have found alot of things that have helped my son so far and I have even signed him up with a new doctor who is willing to do enironmental testing.WOO HOO !! I also do alot of advocacy in my local area. Anyone who would like to network with me - well that would be great.

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by cell88, Aug 23, 2008 11:25PM
my son is 3 ? pdd/nos he is very friendly outgoing and like new thing he trys to talk butt is hard to understand they say he has a hearing delay too. they put him on b6 and mag. its helping

by MJIthewriter, Aug 24, 2008 04:46PM
I'm 25 dxed PDD NOS at age 6. I'm not sure about the environmental toxins and autism link. I've heard it being thrown out there along with a number of other things. I'm curious to see what you think are toxic chemicals.

If you want some help, I can offer what stuff I know. I take a different approach though. Rather than try to remove my autism, I try to live along with it and take advantage of the strengths it has to offer. Sometimes it's a challenge because the same strengths can also be the same weaknesses, such as having an obsessive nature. It can get in the way, but it can also help me focus on the things I work at. I view it like anything else. There are strengths and there are challenges.  I can say what things I've done to help overcome some of my challenges and that may be helpful, or it may not be.

I've found ANI (Autism Network International) to be a good advocacy group.  You can also check out wrongplenet.net to hear from other autistic people. They can help you know what things to expect as well as help you be able to relate to your son.

by glasko, Oct 16, 2008 05:30PM
my son is 18, has autism pdd/nos since age 3, starting with speech, hearing delays, then to behavior issues, now to a full grown adult with little to no help from our community.  He graduated from high school with a regular diploma and has started fall semester at a community college because we as parents did not feel he was ready to be away from home on a college campus with no help.  The college has been very slow to respond to our request for assistance and my son is now on the struggling list in a computer intro to Java class.  We can not help him in this course as parents, and the school has no tutor available and the teacher is way over his head and does not understand my son, or autism at all.  I do not know where to turn.  I would think a community college receiving grant money from our state would be entitled to find someone who can guide him through this class,  but I am being told that this is not high school, and this is how college works.  Any help on where to go from here.  I am sure we have more challenges ahead as he enters the college/work force.  I need someone who will help a autistic adult.  Any ideas.  We live in a small NH town.

by babsj25, Nov 05, 2008 10:00AM
My son is 9 years old and was diagnosed last year with PDD. I am okay with it. God cannot give me more then I can handle but He must have felt a need to give me a special son who I love dearly and would try to find every avenue for a cure. I just read the Jenny McCarthy article in People magazine and cried knowing I have gone through some of the situations she has.
I know help is on the way! I believe it in my heart! I don't know where to start but I'm thinking big picture here! I'm not resting until God grants a miracle cure.
God bless you all!
Stranded with very little understanding in Kansas

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