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Thanks to everyone
Sep 11, 2008 11:04PM
- 5 comments
Thanks to all the nice supportive comments on my last journal entry. I agree that I probably cant give up all together. I am in the middle of a nightmare and ready to wake up.
Sorry for being such a B word but I have had hardly any sleep and getting jerked around by dr office personnel is really frustrating. I was very irritable and I totally apologize.
Instead of doing what I said I did the opposite today. The dr's nurse in Memphis called me this morning and I guess it was a real wake up call for me. The doc wanted radiology report from MRA. I did not have it and she stated he really wanted to see it and gave me the direct fax #.
I then went on a search for the report. I called my PCP and asked if I could make an appointment to discuss some things because they never return calls. They set up an appointment and I asked for the report to be faxed. To my surprise this dr had already sent a report to my PCP from my visit with him. He stated in the letter everything he had told me. Shocker huh? He says he does not think the trigeminal nerve has a vessel impinging it and is doubtful about decompression surgery will help. But he is willing to explore the nerve in the same way that the decompression wis done.
My PCP thought the same as me, a Heck Naw! She is referring me to Vanderbilt in Nashville they are seeing me next Wednesday. The neuro clinic they have is supposed to be great. I have to see 2 doctors there and possible have a test run but the scheduler at my PCP didn't tell me what test.
I also called the Endo I saw on the 5th and requested a copy of the blood work he did. They could not find my chart in the chart room and she said the doctor must have it. She put me on hold and came back to say that she could fax to me once he released the chart back to her. Exciting! Someone is actually looking.
This has been very reviving for me. Basically I am starting over with a neuro but thats ok for now. Thanks to my insurance being PPO they are seeing me very quickly. I may feel the same way again soon but right now I am psyched again.
I guess God is letting me know once more that he is in control not me. I lose sight of that sometimes. He can take care of things better than I could ever even dream of.
Thanks to the encouragement. I guess I will get back on my antidepressant meds. Mood swings are getting pretty ridiculous.
I guess I am not finished yet. Pray for me if you get a chance. Thanks.
Sorry for being such a B word but I have had hardly any sleep and getting jerked around by dr office personnel is really frustrating. I was very irritable and I totally apologize.
Instead of doing what I said I did the opposite today. The dr's nurse in Memphis called me this morning and I guess it was a real wake up call for me. The doc wanted radiology report from MRA. I did not have it and she stated he really wanted to see it and gave me the direct fax #.
I then went on a search for the report. I called my PCP and asked if I could make an appointment to discuss some things because they never return calls. They set up an appointment and I asked for the report to be faxed. To my surprise this dr had already sent a report to my PCP from my visit with him. He stated in the letter everything he had told me. Shocker huh? He says he does not think the trigeminal nerve has a vessel impinging it and is doubtful about decompression surgery will help. But he is willing to explore the nerve in the same way that the decompression wis done.
My PCP thought the same as me, a Heck Naw! She is referring me to Vanderbilt in Nashville they are seeing me next Wednesday. The neuro clinic they have is supposed to be great. I have to see 2 doctors there and possible have a test run but the scheduler at my PCP didn't tell me what test.
I also called the Endo I saw on the 5th and requested a copy of the blood work he did. They could not find my chart in the chart room and she said the doctor must have it. She put me on hold and came back to say that she could fax to me once he released the chart back to her. Exciting! Someone is actually looking.
This has been very reviving for me. Basically I am starting over with a neuro but thats ok for now. Thanks to my insurance being PPO they are seeing me very quickly. I may feel the same way again soon but right now I am psyched again.
I guess God is letting me know once more that he is in control not me. I lose sight of that sometimes. He can take care of things better than I could ever even dream of.
Thanks to the encouragement. I guess I will get back on my antidepressant meds. Mood swings are getting pretty ridiculous.
I guess I am not finished yet. Pray for me if you get a chance. Thanks.
Hi there,
I'm glad that your not giving up! I felt like that until I started seeing my new dr, and like you, felt a little better about how things were going. It really does make a big difference when you feel like you are on a path to somewhere.
I will pray for you and that your neuro is superfast!
I'm glad that your not giving up! I felt like that until I started seeing my new dr, and like you, felt a little better about how things were going. It really does make a big difference when you feel like you are on a path to somewhere.
I will pray for you and that your neuro is superfast!
You have nothing for which you need to apologize. I know I put myself in the same corner where I don't want to deal with this. You know what happens? I end up feeling worse, with no appts. scheduled or anywhere to turn and essentially "straneded." That is no good, I am trying to not let it happen to me in the future and don't want it to happen to you!
I can really realted to wanting to "wake up" from this. It does take on a very surreal feeling! My undiagnosed condition unfortunately acts up when I lie down. I try to sleep propped, but always move in my sleep to a more prone position. So everytime I wake up, I can't pretend, for even a second, that this is a non-issue. I always awake to a bunch of weird and upseting symptoms.
I've had to train myself over time to NOT then starting thinking about doctors and how my life and work are affected, or else I'd never get back to sleep! I have to tell myself that those issues will be there in the morning to think about, but that I am not to entertain them at 3 AM when I should be resting. How lousy though that on top of everything else, even trying to rest and relax remind me of this @#%(!!!
I am glad that there seems to be some flutter among your doctors. And starting over is not a set back if the last one was of no help. It sounds like you are doing what you can, and maybe even getting lined up with some docs who can help.
Do take care of your mood. Sounds like you are on quite a ride, use all the tools that you can to get through this!
I can really realted to wanting to "wake up" from this. It does take on a very surreal feeling! My undiagnosed condition unfortunately acts up when I lie down. I try to sleep propped, but always move in my sleep to a more prone position. So everytime I wake up, I can't pretend, for even a second, that this is a non-issue. I always awake to a bunch of weird and upseting symptoms.
I've had to train myself over time to NOT then starting thinking about doctors and how my life and work are affected, or else I'd never get back to sleep! I have to tell myself that those issues will be there in the morning to think about, but that I am not to entertain them at 3 AM when I should be resting. How lousy though that on top of everything else, even trying to rest and relax remind me of this @#%(!!!
I am glad that there seems to be some flutter among your doctors. And starting over is not a set back if the last one was of no help. It sounds like you are doing what you can, and maybe even getting lined up with some docs who can help.
Do take care of your mood. Sounds like you are on quite a ride, use all the tools that you can to get through this!
The good thing is you are really not starting over - look at all the tests you can take with you for them to evaluate from a fresh perspective. I know I get frustrated and "quit" or relinquish control to the doctrs like I did earlier this week, but it usually doesn't last more than a day. Why? This is our body, not theirs! And we have to take ownership of it, the good and the bad. No one else will look after us the way to do for ourself.
Vanderbilt sounds great - I am so glad you get to be seen so soon there in the clinic. Do keep us posted. If you need another person in your corner pushing you back into the ring, let me know!!!
My best,
Laura
Vanderbilt sounds great - I am so glad you get to be seen so soon there in the clinic. Do keep us posted. If you need another person in your corner pushing you back into the ring, let me know!!!
My best,
Laura
I agree with Laura, we are the owners of our bodies, so that makes us in charge... The Doctors work for us... heck we pay them, Right..?
You hang in there, we are all here to support you so please don't worry about gripping, if we can't feel safe to let off steam here than where can we.
Hey I have been gripping about my pain level since I joined and no one has asked me to leave or to stop. For the first time in over 20 years I feel as though I now have a group of dear sweet friends who care and understand...Please let us know how you are doing and know that we all care about you..
Hugs & Prayers...DJ
You hang in there, we are all here to support you so please don't worry about gripping, if we can't feel safe to let off steam here than where can we.
Hey I have been gripping about my pain level since I joined and no one has asked me to leave or to stop. For the first time in over 20 years I feel as though I now have a group of dear sweet friends who care and understand...Please let us know how you are doing and know that we all care about you..
Hugs & Prayers...DJ
I know sometimes the frustration level of feeling like c-r-a-p everyday and having drs not take you seriously, can be overwhelming.
I'm sending you prayers and strength to push forward until you get that dx. We are all here for you and know what you are going through.
Take care of yourself and stay with us so we can help.
Hugs
doni
I'm sending you prayers and strength to push forward until you get that dx. We are all here for you and know what you are going through.
Take care of yourself and stay with us so we can help.
Hugs
doni
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