All Journal Entries Journals

day after 8tx, always something new, no one said it would be easy

Sep 13, 2008 - 9 comments
Tags:

one

,

easy

,

day

,

after

,

eyes



I'll say it's the day after my shot and 2 ribivarins, but I take 3 ribo in the morning. My mouth feels like an ashtray, it is not as easy to swallow as it used to be, sore throat, cough, congestion, aches and pains. Sob. I seem to feel like I have sand on me and in my eyes the first few days after tx. I really don't want to sleep my weekend away.

No diarrhea today or nausea, tremors are still active..

Luke slept until 10,  nobody said this would be easy. I have to pray and get out of myself, hard to do when you feel like laying around.

I look forward to comments and words from fellow dragon slayers, I find myself going back and forth from here and myspace.
No one does this alone!

Peace and Health

Comments
Post a Comment
Avatar_f_tn
by jt57, Sep 13, 2008
I take my 8th shot on Monday.  Yes, I must say, this is one of the hardest things I have ever done in my life.  the lack of energy, headaches, muscle aches, feeling like and absolute AIR HEAD, and no motivation is really getting to me.  Not to mention lab results are not looking good.  The only thing going my way, which is the goal here, is my vl.  I am responding, but it is kicking my butt in the process.  Hang  in there.  We can do it.  ONE DAY AND ONE SHOT AT A TIME!

Prayers your way!

Jean

461838_tn?1255793816
by headshop, Sep 13, 2008
You sad it,,,,,,WE
God bless

Peac and health

Avatar_m_tn
by 122 Tactical Fighter Group, Sep 13, 2008
Yes indeed - it is US! And there are a lot of us...I did clinical trial for intrfrn / riba in '96 ..... one blast every other day for one year...and I see you guys talking about a 14-28 shot series and get jealous! But hey - it did work for me. We are at post 10 years tx and I just had labs done last week to check vl again...its been UND since tx ... try a good hard candy for your mouth .... even a pack of lifesavors might just be that......heating pads work well for body aches...warm baths are relaxing. And I dont normally promote otc pain products, but advil does work some.......best of luck to you ... I have walked in your patients shoes and I can feel your distress......there is a light at the end of the tunnel - and its not another train! Enjoy the day in the best of health and disposition possible....eagle

461838_tn?1255793816
by headshop, Sep 13, 2008
Thanks theeagle,
I appreciate your support and kind words. Wow, somebody was telling me last night that went through the same type treatment you did. My hat off to you and all that have survived this tx.
I hope you continue to go UND

Peace and Health

559277_tn?1330622339
by sunqueen, Sep 13, 2008
I did shot 11 yesterday. Was actually beginning to feel *slightly* better in wk 10. Still exhausted, aches, SOB and irritable, but it didn't seem as bad. Felt awful by early afternoon yesterday and came home 2 hours before my normal quitting time. I hit a wall of nausea and tried to eat so I could do shot and Riba (I do 3 + 3/day). That didn't work. Drank a lot of water and did tx. Today, not so bad. Don't have a lot of ambition but I gave myself permission to be a slug today. Dude, you work! This stuff is hard enough to do, even under the best of circumstances.  

Find something relaxing that you get some enjoyment from. Get rest. Know you aren't alone. Every day, I pray that those of us who are treating have the strength to go another day. I also pray for those who have completed, that they may never have to do this again. It's going to be okay. We have some good days and some very bad days. Together, we'll remember that much better days are always ahead.

Blessings to you.

461838_tn?1255793816
by headshop, Sep 13, 2008
I have to remember a saying that helps me "This too shall pass",  but my addictive self wants it to be immediate. I wanted to jam on the guitar today, wrists, findgers and elbows bummed that out. I want to go to a meeting tonight don't know if I'll feel like it. I am in the slug,lol mode, and I missed 4 hours of work Friday. This might be the hardest thing I have tackled yet. 2 bad marriages didn't kill me, hehe.
I have learned to do a list of everything I am grateful for, then things don't look as bad. I think/ I will do that.

Peace and Health

Avatar_f_tn
by jt57, Sep 13, 2008
At least we have an option for treatment!!!!  That's one thing to be grateful for.  It may not be fun, but we do have a chance of getting rid of this monster!!  Stay positive!!!!

Avatar_m_tn
by 122 Tactical Fighter Group, Sep 13, 2008
positive is a very good way to be....this therapy wasnt even available except through clinical trials when I did it....its a lot better now and is a viable way to slay the dragon..............you can do it......

461838_tn?1255793816
by headshop, Sep 13, 2008
I laid down and 2 hours later I wake up thinking I am sleeping this portion of my life away, no meeting, just more rest tx is requiring of me. I have an appointment this week. I believe I will also make an appointment with Social Security about disability.  I am hot flushed, sweaty and hungry yet my bloated stomach doesn't want anything to do with food. I guess I just feel weird, where I don't even want to be around anyone. I have to realize it's the meds and sx, just have this new yuck feeling.

Peace and Health

Post a Comment