Apr 10, 2011
i have been sick for three years was told i have fybromiagia,in 2010 i started to research my symstoms and found out i could have lyme disease i rememeber getting a tick bit,but never thought of lyme, so i asked a doctor outside of va health care to do a western blot test it came back positive for lyme but the va wouldn't accept it so they did two test of thier own all came back with positive lyme but they still did not believe i had it so they did a pcr test on whole blood it came back neg so now they wont help me,however my igm kept comming back with two bands positive but the igg was neg. i have found out that if u have had lyme for 3 years or less it wont show up positive with the igg. you see the infection is no longer in the blood stream ,it hides in the ligaments,tendons,nerves,one of best test for cronic lyme is the byopsy pcr test even the spinal tap dosn't always show up. i have recentlly left the va and went to doctors on the outside for treatment. i have had a lumpo in my arm pit for three years where i had tick attached to me for a day or more, and they have done nothing other than more cat scans,mri's,mammorams,and ultrsounds which showed up nothing now my new doctors are doing a byopsy on it soon to see what it is. My doctors tell me i have lyme regardless what the va has to say. i have problems with my feet on fire,icking,pain with walking,headachs,spin on fire with back pain,fingers go numb,shoulders hurt,muscle soreness,knee problem and my hips, a lot of people are being told they have ms,arthritist,fybromialgia,and other known disease when in fact they most likely have lyme, if u have a pcr test done i would advise u to stay away from it being done on ur urine,and spinal tap ,because they can give a faulse neg for lyme the best way is to go by ur symtoms or the byopsy of the skin. i have since filled out a clame against the va for not treating me for lyme.
my husband is in the middle east i went to visit him one year and went to see a homoeo doctor for my thyroid and he cured it and the va cant explain why its working again. i have since sent my medical recoreds to him and he says they have a cure for lyme there when my husband returns in a few more months he will bring me meds from there, i do not trust the va i have been a memeber for years and they dont know what they are doing i have taught them so much about this disease and still they wont help. No one person has the same symtoms. i have been treated so far with one antibiotic with no result,If the homeo meds work out for me i will post what it was made from so u can try homeo meds out for ur self. If u have any questions for me feel free to ask, for u dont have to have a positive igg which means there is an ifection or past infection,because haveing a neg igg dose not mean u dont have lyme, u only need two bands to be positive for lyme. good luck to all i shall pray u.