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I am getting the run around

Jan 17, 2008 - 1 comments
Tags:

cardiomyopathy

,

cardio

,

ventricular

,

hypertrophy

,

Baby



My sweet little baby girl is 6mths old.  She has been to ever doctor known to man kind from day one.  The most important issue right now is the heart.  At two months they (PED CARDIO) thought she had Pulmonary valve stenosis.  Then at 4 months it was possible Pulmonary Valve stenosis plus significant left venticular hypertrophy (thicking of the vintricular wall) along with mild right vintricular hypertrophy with bundle branches.  Recently at her 6 month appt they (PED Cardio), found that she does not have PVS she only has the right & left hypertrophy.  Uh hello so confused.  When I am at the doctors office I have a list of questions to ask, they are answered properly by the time I walk out of the doctors office I feel such a brain over load.  Seriously I feel like I should either take short hand classes or see about bringing in a recorder.  Any way our next appt will be with a cardiomyopathy clinic.  Has anyone ever heard of right and left ventricular hypertrophy in infants?  I can't find anything on the web about both at the same time.  If you have, do you know if this is something she could grow out of? Or what other underlining things could be going on.  Looking forward to your messages.

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by florenda, Mar 09, 2008
I hope this helps.

Hypertrophic cardiomyopathy is the thickening of both the right and left ventricals.   This is a genetic defect in the enzimesthat regulate the heart muscles growth.

I hope this puts you on the right track to help your little one.    God bless!

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