Jan 18, 2008 12:44AM
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I've been diagnosised with Giant Cell Arteritis. Does anyone have this? I have not been able to get a biopsy but the doctors have put me on prednisone since April. I thought it was gone and then it started again. Sometimes my head is so sore all I can do is hold it and cry and pray. I have arthritis in my jaw and cheek bones and migranes, which makes it difficult to know exactly what is causing the head pain on any given day. My jaw bones are cracked, the pain is in the same area as Giant Cell. Its hard to disinguish where the pain is from until it spreads all over my head. It says that this illness can cause blindness if you do not take prednisone so I take it. Prednisone causes a multitude of other medical problems, it helps one and creates new ones. Since being on prednisone I have allot of water retension all over my body, especially my legs and feet.Some days I can hardly walk because of the pain from edma. The pills to reduce the water do not work for me. Please contact me if you have this illness. I have other chronic illnesses that also cause pain, Fibromyalgia ,Polymyalgia, and Arthritis. My muscles have become very weak since starting prednisone, I now have to use a walker to walk through a store. A year ago I could walk through a mall and run down the street and now I feel like a big whale stranded on a beach. I am very strong emotionally but this illness frightens me. I know that prednisone helps many people but I feel very ill on it. My throat even tightens like it does from an severe allergy.
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