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my last two years on topamax

May 22, 2011 - 4 comments


I have been on Topamax for about 2 years now for migraines.  I am on 150 mg per day.  I take 3   50 mg pills before bed each day.  I have definitely had my issues on topamax.  When I first began on it, the appetite loss was extreme but I eventually adjusted.  I have lost almost 50 pounds on the drug and have finally got into a size 10 just this month.  My goal is a size 8, 150 pounds as I am 5 foot 6 inches tall.  I have had issues with trying to think of words when I need to, the nickname "dopamax" for the drug is definitely right on!  I have also had some minor hair loss here and there but nothing too drastic.  However, the number of migraines I get in a month has gone down drastically.  So... you trade one major misery for a few smaller ones I guess.  And the weight loss has been a plus.  If anyone would like more information on my  experience just ask!

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by rftallent, May 23, 2011
I've been on topamax for about a month for migraines and I'm up to 100 mg per day.  I haven't noticed a weight loss, but thankfully no hair loss or tingling.  But, nothing tastes right anymore.  Not only are carbonated beverages flat (which I had been warned), but everything tastes sweet - even a plain, salty potato chip.  I took topomax two years ago (same dose) and I didn't have this side effect.  Have you had this experience, and if so, how long does it last?  I've only had one mild headache since I started taking it, but I'd like to find something that is palatable.  Otherwise, I will lose weight for sure!

by smoosherums, Oct 26, 2011
I have been on it for about 4 weeks I think. I started out with 25mg in am and 25mg at pm. The next week I went up to 25mg in am and 50mg at pm. The next week 50mg at am and 50mg at pm. Then I switched to 100mb all together at pm.
At first I could not eat a lot at once. I thought oh great! I still eat, just not as much. I went on it for weight loss but my doctors thinks it's for my migraines that I've had all my life. Now the eating part has kinda just disappeared I think. I have been socializing a lot lately with family in town and they just left so that may be it, hopefully I will get back to the feeling stuffed part.
I have had the tingling in the mornings mainly but it disappears after a short while. I experience a few minutes here or there but no big deal at all. Hair loss? Yep! Here it comes.... It is really starting to come out now. I am thinking because I just started the 100 this past week it started that and hopefully that will calm down after a while.
I stopped drinking soda (which is a good thing I figure) cause I can not stand the taste like you said. And other things taste weird but I am just weeding things out as I go along...
I have not had one headache. I had a touch of one and I didn't have to even take over the counter stuff so that was good..
How are you taking your medicine? All at once, the 100mb? At bedtime?..

by stephmarie1972, May 12, 2012
Ive had severe migraines as far back as first grade. I just turned 40 in March. I have tryed everything, Nothing has worked. Migraines have taken over my life. 4 to 5 a week with up to 2 a day. Working was hard. Let alone taking care of 3 boys. Everything from what i ateto smells, the sun, you name it. Finally my Dr. gave my the drug that for me would save my life. TOPIRAMATE. I take 200 mg in the am and 200 at bed time. I started out at 50 mg and moved up.That was 3 years ago. Yes i lost weight, but i always have been a skinny person so thats fine with me. The pain i was in is worth it any day. Migraines run in my family. There is not a day that goes by that i dont forget to take my pills. As for eating... i feel i eat like i did before. im very thankful for this pill!!  

by BusyMoM643, Jul 15, 2013
I just started Topiramate. I stated one 25mg then moved to 50mg tonight I go to 75mg. I haven't had too many side effect but it only been two weeks. I hate soda, I tingle in my heels, and my finger tips, and I have some mild weight loss. I have no had a migraine since starting the medication which is amazing! I don't mind the weight loss some would be nice I can live with the tingling it goes away after a few minutes, I CANT GET ENOUGH WATER!! I am so thirsty all the time I drink water all day everyday I wake up in the middle of the night to get a drink. I hope I don't get the dopey effect. I think if I do at 75mg I will go back down to 50 because so far I have not ha a problem.

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