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I lost my baby but will keep trying.....

Sep 30, 2008 07:20PM - 11 comments
Tags:

my baby

,

Lost

,

Pregnancy

,

baby lost

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trisomy 9

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Chromosome 9 trisomy 9p

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trisomy

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genetic disease

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would like to get be

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heart stopped

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No Heartbeat



To all my friends here at Medhelp,

Sorry I have been MIA. The past few months have been so tough for me. I lost my baby end of June. Everything was doing fine 'til one day. We came in for an u/s to check my baby's hb and I can still remember the shockedness and sadness on my RE's and dh's faces. I cannot believe it when my RE said "your baby's heart stopped." I was so devastated. I didn't want to believe it at first, even up to the time I was in the operating room for my D&C. I didn't get the D&C 'til after a week. I was scared and hopeful at the same time, that it was just a mistake and a miracle may happen. I even went to my gynecologist to get a second opinion but all was confirmed. My RE did another last u/s to confirm everything before the D&C. I lost my baby.

My husband and I decided that we wanted to do a pathology test to find out exactly what went wrong. My baby was a boy and he had Trisomy 9, a very rare genetic disease. His heart finally gave up. Here is a site that has info about Trisomy 9,  http://www.trisomy9.com/. To make matters worst, I got really sick from the D&C. I picked up bronchitis and my immune system was so low that made me so weak that it took me so long to recover.

My DH and I will take a break for the rest of the year and start again maybe next year. Hopefully, 2009 will be a better year for us.

Thank you for all the support. And please keep me sending news, whether it be bad or good cuz I'm still here and would like to be part of everyone's journey. We are all here for the same reason and will always be here to support everyone.

Good luck to everyone!!!

Melissa

Comments
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by JoyRenee, Sep 30, 2008 07:30PM
I am so sorry to hear that news! I have an online friend at www.audreycaroline.blogspot.com and you should read her story. Her baby died two hours after she gave birth (they knew she was going to die). I hope you can find love and support from her and other mothers who've lost their babies.

Joy

by TrudieC, Sep 30, 2008 07:58PM
My heart is breaking for you.  I lost 4 babies (one at 4 months along, 2 at 3 months along and 1 just after I found out I was pregnant.  The pain will dull with time but will never go away.  One day, 20 years later you will still cry.  I am glad you posted.  You need to talk about it and sometimes our husbands and family can't bear to hear it.  Here is such a good place to share your pain.  I so hope you will be able to regroup and successfully try again.  It is so worth it.

Hugs, Trudie

by lozza415, Sep 30, 2008 08:03PM
heyy sorry about what happend.
youu sound like a really good hearted person and i know how hard it is to loose a baby my best friend lost hers 2 months ago.
im lauren and i new i did a qwestion can youu please help me out.
xoxo hope we can be friends and ur right were all here 4 the same reson

by mj_mommy_manda, Sep 30, 2008 09:25PM
Im really sorry for your loss.. I lost 3 babies.. all due to trisomy 14.  I carry it. and pass on the extra chromosome with most of my pregnancies.. I am now 36 weeks pregnant with a healthy little boy.  One day you will get your miracle! I will keep you in my thoughts and prayers, I know how hard it can be to go through.  Good luck

by babywant, Sep 30, 2008 09:50PM
Just hang in there my dear...I know what you're going through.  I had a miscarriage  after an IVF treatment at 8 weeks when the U/S couldn't see the little light that was the tiny heart on the screen anymore.  I will never forget the hurt and pain I felt but I had to go on and a year later - which is now - I will go to another fertility centre and see what my options are.  You see, in my case it's almost impossible to get pregnant naturally and the amount of money needed for another IVF treatment, here in Montreal Canada is about $12,000 each time...which in my case, i don't have. Just know that you're not alone and that one day you will have your baby.  You sound like a good hearted person and God doesn't forget people like you - have faith!!

by rosebud38, Oct 01, 2008 02:55AM
I know what you are going through.My little boy went to heaven just one week ago. MY husband and I really want another child, but we are afraid of what might happen again what are the chances of it happening again. My son had trisomy 21 I went into early labor, not even 6 months. My baby was so tiny and beautiful. It is the hardest thing I've ever been through. If you need a friend, just has I do. You have one in me

by Nancy2004, Oct 01, 2008 06:49AM
So Sorry I had a still birth and was 7 mths pregnant 3 yrs back and Now I have Abby that is 2 Things have a way of working out take care hope you are feeling better soon

by OurBaby2009, Jan 02, 2009 03:07PM
Dear Melissa, My heart goes out to you for your loss. My miscarriage has been THE most painful thing I have ever been through in my life.  I am so very sorry and will say a prayer that 2009 is indeed a productive year for you!!!  I just got my cytogenetic report back and my baby boy also had trisomy 9.  Everything I've read claims this is very rare, so my fiance and I are going to keep trying.  We got pregnant once (we weren't even "trying") so we can get pregnant again!  I believe you will too!

-Lauren

by olivai, Jul 05, 2009 01:44AM
Hi, i just lost my baby at 8 week of pregnancy and i feel so bad.this will be the second baby i lost this year. i had my tubes reversed to be able to have another baby with my new husband. when i went to the hospital on June 22,2009 they told me my baby was in my ovary. so they gave me an anti-cancer med to make my baby die and come out by it's self. so i didn't have to have surg-. I think that this was the worse thing that ever happened to me because i still have my baby inside me. they say that my body will absorb the baby. i don't know but that didn't sound right. but i guess i have to do what the Dr Say's that's good for me. anyways during everything that i was going through my husband left me. so now I'm dealing with all of this and more cuz i feel so alone. i hope some one can help me understand why thing are so bad all at once. thanks- olivia

by blueyes34, Jul 05, 2009 08:39AM
Melissa, I'm sooooo sorry for your loss.  I lost my son at 6 1/2 months last year, I just all of a sudden felt no more movement.  I had to deliver him and later went for a d and c as well.  Many of us feel your pain.  I wish there was something that I could say to take away your pain and sorrow.  Unfortunately, the only thing that seemed to help me was time.  I miss him everyday and you will never forget him.  We are all here for you, lean on your DH for support and let us kow if you need anything.  I'm always here to listen or help out whenever I can.  Sending you my thoughts and prayers.....

Penny

by fertilitymoms, Jul 06, 2009 04:21PM
Thank you everyone for all your support. I read everyone's messages and I really appreciate it to hear from all of you. It is true that you wouldn't know how it is really like to lose a child until you go through it. A lost will always be a lost...it doesn't matter at what stage of pregnancy. It has almost been a year but I still get sad and cry everytime I think of my baby. I know he is at a better place now but he will always be in my heart and my mind. I will never forget him.

I'm lucky to have a very loving and supportive husband. I wouldn't know what to do without him by my side.

This year, 2009, we are taking a break from any infertility treatments. I just want to detox my body and be healthy. I started Fertility Blend in November. I have amenorrhea and PCOS and I thought "what the heck", I might as well try something natural, herbal and not synthetic. I showed it to my doctor and he said that it's ok to take since it's just a vitamin supplement. The first couple of months I wasn't taking it religiously. I hate taking pills. But then, I started spotting so I thought it must be working. In January, I totally stopped it. Then, a miracle you can say happened...I got a real period end of February. One week of  a real good flow period. :) At one point, I got worried cuz it went on for a week. I've never really had a full week period since I was a teenager. Since then, I've been taking FB religiously, 3 capsules a day. At first, I was getting a lot of spotting in between cycles. I thought about stopping again cuz I got scared cuz I was spotting almost everyday but I decided to continue to see if FB will really work. And besides the fact that I haven't bled on my own for years so I thought my body must be taking awhile to kick start my reproductive cycle. April and May, my cycles were 18-19 days apart. Then, in June it was 23 days from my last cycle. So, it seems like my cycles are getting better. I don't get spotting in between cycles anymore and even my doctor cannot explain how this supplement can be normalizing my periods. Hopefully, the next months will be 28-30 day cycle. And God willing, I will ovulate and get pregnant naturally.

Thanks again for all your support and please keep in touch.

Melissa :)

*Please visit me at www.shopLissa.com. We carry women's and kid's clothing. 20% for all Medhelp members. Enter Med20 at checkout. Thanks again. :)



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