Return to Summary page
Friends | Journals | Notes | Photos | Posts | Trackers
Previous | Next
 |  Del.icio.usYahoo BookmarksFacebookGoogle Bookmarks

Pseudo Tumor Cerebri / Lumbar Shunts

Jan 24, 2008 05:34PM - 2 comments
Tags:

PTC

,

tumor

,

shunt

,

lumbar

,

cerebri

,

syndrome

,

menieres Disease

Hi My name is Adriana and I live in Phoenix, Arizona. I'm 31 yrs old. When I was first 22 I was diagnosed with PTC. I had no clue as to what was going on! and pretty much still don't.

A few years after my lumbar shunt surgery, I started getting dizzy spells and severe vertigo. I was diagnosed with Meniere's Disease (Syndrome). I have lost significant hearing in my left ear and in the past week started experience a fullness or hollowness in my right ear. I'm afraid that the Meniere's is acting up again or that the shunt is malfunctioning and may need to be replaced.

Has anyone else experienced and or think that the Menieres is related directly or indirectly to the PTC??

Comments
Post a Comment
by dmoncus, May 17, 2008 11:23AM
Hi, my name is Donna and I have a 12 y/o son with PTC  they say that it is rare in young boys and just informed me that he will need a shunt  I was wondering how you have done since the shunt and has it helped in the pain level.


by mamita00, Aug 06, 2008 10:27PM
Hi Adrianna, nice to meet you. My name is Kim. Sorry I don't have info on Meniere's Disease. I would like to as you about the shunt, though. What was it like having it done? Where is it? Was it a difficult decision to make?  I'm almost maxed out the Topamax, already done so on the Diamox and take Neurontin three times a day. My neck hurts so badly as well as my head and I live in sunglasses. The neurologist says after the next tap perhaps we should do a shunt. Not a for sure, a thought at this moment. I want to know more about it/them.
                                                     Thanks

Post a Comment
Post