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Week 10 - Feeling Good

Sep 26, 2011 - 6 comments
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Week 10

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Feeling good

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triple treatment

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incivek



Week 10 of triple tx.  Thanks to neupogen my wbc are back in normal range and hemoglobin in hanging between 9.2 and 9.4,  I feel better than I have since I started treatment I think in large part to the neupogen and also starting an immodium regime.  Diarrhea or should I say "fiarrhea" for 8+ weeks was the worst.  I have a metallic taste in mouth and even water is hard to drink.  But I've been flavoring it with lemon and lime.  I know how critical it is to stay hydrated so I still shoot for nothing less than 64 ounces per day.  My sense of smell is on overload and every little smell can send me into a fit of dry heaves.  Even with all this I feel pretty good.  Knowing that I am in the final stretch also makes things easier.  I am looking forward with great anticipation to my last dose of incivek.  If anyone reads this journal, I hope it gives you hope.  We can do this!!!

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by Dee1956, Sep 27, 2011
Thanks so much for your post, it does give me hope.  I am on week 4-5 and will be getting my blood tested on Friday to see if it is working for me.  I know how you feel, I am tired of being sick and tired, the bad taste in my mouth is the worst.  I wish you the best
Thank you again for sharing
Dee

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by Dee1956, Sep 28, 2011
I'm back, your post is helping me even reading it the second time, I have a terrible taste in my mouth, everything smells bad and like you I am close to gagging all the time.  I think the depression is starting to hit as I feel so awful.  Please continue to share.  I hope to send you something on my one good day of the week that is a little better than this pitiful post :)
D
Oh, I am about to do 5th shot

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by SunShineGirlie, Sep 28, 2011
week 7 of Incevik for me - the worse side I have is anemia - I start Procrit tomorrow so hopefully it will help.  I didn't get the other sides from the PI (not yet) except for severe nausea but it only lasted a few weeks

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by ann61, Sep 28, 2011
SunShineGirlie,
Despite anemia I haven't had to resort to procrit.  But neupogen for low (almost non-existent wbc), seemed to save me.  Rescue drugs are pretty amazing.  I understand the procit may take a little bit of time to kick in, but I hope you feel better.  Overall, it sounds like you are doing ok.  Hang in there!

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by Dee1956, Oct 04, 2011
ann thank you for explaining about the procrit and neupogen, I always gt confused as to what is for what. Right now my hemoglobin (red blood cells?) is low, got a call yesterday to go get more blood work to keep an eye on it.   I know my WBC is a little low but the RBC must have dropped more for them to call.
I guess that is why I feel breathless and tired?
When I did a trial in 08 this happened but back then they would not give any rescue drugs and just reduced the med
Thanks again
D

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by ann61, Oct 04, 2011
Dee,
I tried to send you a note regarding rbc and hemoglobin, but think I mistakenly deleted it.  So I will try again but in slightly less detail.

Hemoglobin is a component of the red blood cell.  My last blood count had my rbc at 2.87 and hgb at 9.2.  A low count of either can cause anemia.  Both are involved in transporting oxygen to our organs and tissues.  Most commonly, people with anemia report a feeling of weakness or fatigue in general or during exercise, general malaise and sometimes poor concentration. People with more severe anemia often report shortness of breath on exertion.

It sounds to me like you are anemic.  The question is whether procrit should be initiated to stimulate production of rbc to treat anemia.

Keep me posted. Ann

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