life after brain tumor surgery

I have been waking lately up with my hands hurting like they are asleep,kind of tight and swollen. It hurts to make a fist. Goes away as the day goes on but always comes back when i am sleeping.

Unfortunately no one prepares us for brain surgery.  I had a tumor removed 5 years ago and I still remember the trauma I experienced afterwards.  It took me a full six months to even feel somewhat normal and even now I am not the same. Memory loss is definetely a part of the post brain surgery symptoms as well as the fog.  I was sent home with Butalbital. I finally gave up and just stop taking everything.  I went to a neuro opthamologist and he put me on Neurotin which helped my pain I was having behind my eyes.  I went to the Neuro Opth. against my dr's advice because I was having trouble with my eyes.  It turned out that my eyes, becuase of the surgery was healing cross eyed.  I started eyes excersises too.  Your brain will swell for months, possibly 6 months and my dr had told me this but I experienced this for myself.  I still suffer from headaches they call cluster headaches.  I am fully recovered from the brain tumor except for the physcological effects they did not prepare me for.  I hope this helps some. Hang in there, brain surgery takes time to recover from; and if you are like me no one prepares you for the after effects.

i feel exactly the same way. My mother was diagnosed with a glioblastoma on June 5th she had surgery the very next day, went through 33 treatments of radiation and was taking chemo pills. Again about 2 weeks ago, less than 5 months after the first diagnosis, she had a second tumor. She had surgery again. It has been about 3 weeks and she is still in a lot of pain, She is experiencing the same symptoms that she was when she had the tumors, maybe even worse. She is in the hospital right now becuase she has some type of infection. Doctors will do a spinal tap to drain the fluid to see what type of infection it is and how to treat it. But you r so right, so many questions, and absolutley no answers. i am sorry for what u r going through and i will pray for you. I wish you the best.

i have a brain tumor just like you..... i just had my third surgery nothing seems to work for the headaches or the nausea ive learned to eat a couple of crackers be for i take vicodin doesnt always work tho my headaches get so bad i cry but i have different pain meds and so i switch back and forth from vicodin to norco i dont like to be poppin pills all the time but it does kinda work and yes it makes me tired but i just take my nap and hope that the headache is gone when i wake up..............sorry if i didnt help you i have no one to talk to about this so if you dont mind id like to leave my phone number 209-948-8736 maybe we could talk my name is debra

I'm recently out of a brain tumor..a pituitary tumor and mengianoma..I have stammering with my speech, foggy feeling, sometimes things feel surreal, I have weakness in my limbs at time.  Sometimes my tongue gets thick and I slur my words as if I'm drunk..it's very embarassing. I still have Horrific pain in the brain which runs down to what feels like the edge of my eardrum. My head was cut from ear to ear. I've had alot of weird things going on..I was not prepared for this mentally whatsoever. Could someone else tell me what type of psycological effects they are having or have had? I'm thankful I found this blog. I'm not alone. God Bless you all and I'll pray for everyone's speedy recovery..
My name is robin..you can email me at ***@****

If anyone has had a meningioma removed there is a website meningioma.co.uk run by a lovely understanding lady who has an inoperable meningioma. She offers support, info and advice for meningioma sufferers. It helped me and my wife.

Simon

meningiomauk.org is the correct address.

Sorry

Simon

My daughter had a brain tumor removed in 2000 when she was 10.  Honestly speaking, I feel that we are on a constant merry go round. Some days she has head aches and sleeps practically all day.  She constantly daydreams and talks to herself.  She gets so caught up in her daydreams that she urinates on herself.  I thought she was having a seizure during the times she did this on herself, but she can explain to me where she was and what she may have been dreaming about.  She often accuses me of things that don't happen and talks about situations that have never occurred.  We are going to the hospital next month for a week long eeg/video, etc. to see if she is seizing-or what!  Has anyone else experienced any strange behaviors this long after tumor removal?

I had brain tumor removed 11 years ago - at age 30 and still feel in a daze much of the time - two naps per day - headaches - foggy feelings and "sparking of neurons" I call it.   Sudden jolts of smells and colors.
But........the cancer is gone.
God bless your daughter and you.
***@****

hudgreg.at.juno.com