Deb_c430's Profile
Previous
|
Next
things that really bug me
Jan 28, 2008 11:12AM
- 6 comments
I spent some time trying to figure out if I would use this this journel. If so how? All medical jargon, mood meter?
I decided that it doesn't matter, journels are for us personally and though everyone can read them, who cares?
Some things really bug me, so instead of taking out on others, my familys these frustrations, with snide or witty comments, I thought I put it on here, get it out of my system. Play nice.
1. Your watching tv, your bones hurt, your stomach is rolling, but for one half hour you can almost forget that you feel bad, you get lost in a program. Take a commercial break and WHAM! The drug company commercial comes
on, EVERY single one them says "do not take if you have liver disease, a simple blood test will alert you and your Doc"
Now what kind of **** is this? I now know why GI's always say you may not die of this, something else may kill you, well no kidding! You can NOT take anything for anything else! pfftt!
2. People who make catty remarks, about something, around something, but do not have the courage to ask you directly, or confront you directly. I think mob mentality is so cowardly!
3. The itch, the ribo itch, why is it always in the middle of your back where you can't reach it?
4. Why do we not have pretty ribbons, why do we not have people who walk for a cure for us?
5. Why do we not go totally bald? instead we look get heads that have mange! half there half not!
that's it for now, who knows what will come next!
I decided that it doesn't matter, journels are for us personally and though everyone can read them, who cares?
Some things really bug me, so instead of taking out on others, my familys these frustrations, with snide or witty comments, I thought I put it on here, get it out of my system. Play nice.
1. Your watching tv, your bones hurt, your stomach is rolling, but for one half hour you can almost forget that you feel bad, you get lost in a program. Take a commercial break and WHAM! The drug company commercial comes
on, EVERY single one them says "do not take if you have liver disease, a simple blood test will alert you and your Doc"
Now what kind of **** is this? I now know why GI's always say you may not die of this, something else may kill you, well no kidding! You can NOT take anything for anything else! pfftt!
2. People who make catty remarks, about something, around something, but do not have the courage to ask you directly, or confront you directly. I think mob mentality is so cowardly!
3. The itch, the ribo itch, why is it always in the middle of your back where you can't reach it?
4. Why do we not have pretty ribbons, why do we not have people who walk for a cure for us?
5. Why do we not go totally bald? instead we look get heads that have mange! half there half not!
that's it for now, who knows what will come next!
LOL Yep those commericals drove me nutz. I was on Neulasta and it made me so sick I had migraine and bone pain for 10 days after the shot. When I saw the commerical, I wanted to throw something at the TV. Then to add insult, MH started advertising it.
As to #4 Who has the energy to walk for a cure? I certainly didn't! Yep that mange is fun huh? When mine started coming back in I had 1/4 inch bangs for a while. Quite lovely!
As to #4 Who has the energy to walk for a cure? I certainly didn't! Yep that mange is fun huh? When mine started coming back in I had 1/4 inch bangs for a while. Quite lovely!
Hey, where in CA are you? So or North?
Uhm i didn't say WE were going to walk! We need volunteers to do it for us! :>))
Or how about some of the rock stars,? Live Hep C, or Stars for hep C? :>))
Oh I have Neuprogen, I feel your pain as we speak! Geesh it sucks!
Mange head, is awful! Sometimes I wish it had just gone bald, so people would smile at me and say look at the brave women! Instead Wow, the woman is sporting some physco hair!
I am in So Cal, Tehachapi mnts, between Bakersfielfd and Lancaster, neither the prettiest cities, but I do love my mountains!
the good news for me anyway, no offense to and L.A. lovers, is it isn't so cal La. No traffic, I grew up in so cal.
Or how about some of the rock stars,? Live Hep C, or Stars for hep C? :>))
Oh I have Neuprogen, I feel your pain as we speak! Geesh it sucks!
Mange head, is awful! Sometimes I wish it had just gone bald, so people would smile at me and say look at the brave women! Instead Wow, the woman is sporting some physco hair!
I am in So Cal, Tehachapi mnts, between Bakersfielfd and Lancaster, neither the prettiest cities, but I do love my mountains!
the good news for me anyway, no offense to and L.A. lovers, is it isn't so cal La. No traffic, I grew up in so cal.
When I go to my dr in March I'm going to ask about a Hep C walk or if he knows of some kind of awareness program in Chicago. You would think a city with 6.5 million people thre would be something. I've thought about sending the newspapers here some kind of article, I just don't know what to send without being brash.
Side bar: When you were not on treatment did you feel like exercising? I just don't have the stamina and I know I should push myself.
Side bar: When you were not on treatment did you feel like exercising? I just don't have the stamina and I know I should push myself.
I really hated it when people would stare at the top of my head while iam talking to them and noticing the hair i once had is gone. no one every said anything they just stared, so i become self conscious and start trying to adjust my hair. now that it is finally coming back ,iam not getting as many stares. bald would have been better
to philly and sld,
I think there does need to be so much awareness raised on this disease! What a great idea philly! On all three heps in fact!
Yes, I have always been sort of athletic, BUT I have found as time has passed, and the disease progresses, I have less and less energy. So I had to readjust some of it, I used to like the gym a lot, now small weights and instead of elytaptyical, I walk, I also found water aerobics and swimming great, Sometimes it maybe just floating :).
I started that when I was in PT and OT after accident and try to stick with it. Just even simple stretching helps me feel a bit better.
sldb:
Oh geesh me too! I agree bald would be better!
I think there does need to be so much awareness raised on this disease! What a great idea philly! On all three heps in fact!
Yes, I have always been sort of athletic, BUT I have found as time has passed, and the disease progresses, I have less and less energy. So I had to readjust some of it, I used to like the gym a lot, now small weights and instead of elytaptyical, I walk, I also found water aerobics and swimming great, Sometimes it maybe just floating :).
I started that when I was in PT and OT after accident and try to stick with it. Just even simple stretching helps me feel a bit better.
sldb:
Oh geesh me too! I agree bald would be better!
Post a Comment