Oct 14, 2008
I am soo frustrated with the health syestem im a young healthy 21 year old female and ive just been diagnosed with Intercranial Hypertension aka Pseudo Tumor Cerbi,(Ive been told ive completely broken the mold considering im young and thin) and the horrible headaches along with the nausea the double vision is enough to drive me crazy. Ive been put on the highest amount of Diamox to keep the cerebal spinal fluid down and it does help with the pressure but ive just been told i will have to get a shunt put in my spine which blows my mind conserding i have spondlolysthesis spina biffda oculta and degenerating discs(guess i dont sound so healthy after all but iam high fuctioning with the back problems) at least i dont have to shave my head which i would have had to if they decided on the brain instead of the spine to be shunted...for me a young woman having to shave my head would have been torture!!!l Anyway back to the system and i am not by any means dissing all healthcare workers some are just angels on earth but to some doctors and nurses you are just a problem that needs to be fixed hellloo im a person here going through some rough **** im not asking for sympathy but acknowledging the fact that i am human would be nice. And when you work at a doctors office and its your JOB to make phone calls and call in prescriptions please do so I felt like complete **** today and dragged my *** out of bed to see my neruologist and when i get there im told my appt has been canceled and they tried to call me ********! and my prescriptions for nausea and pain were suppose to be filled today and it took my sister 30 mins to finally get someone with enough brain cells to get another doctor from the office to look at my file and call in my medications. Like i said i have encountred many truly caring wonderful people over the years in the healthcare system but my advice to alll people in the medical proffesion is to please remeber you have to like PEOPLE to do this job and doctors please remeber that the most important thing you can give your patient is TRUST, our lives are in your hands that takes courage from us vaule our courageousness and put in the effort to make me trust you.