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A chiari Dr. that truely understands.....

Oct 16, 2008 11:23AM - 11 comments

The following poem is by Dr. John Oro  





So I Say


                                            Another headache


                                            The third today


                                            We all have them


                                            So they say





                                            I’m getting dizzy


                                            My vision blurred


                                            Your getting older


                                            Don’t be absurd





                                            I’m staying home


                                            Too tired to go


                                            Go see your doctor    


                                            She should know





                                            Too many symptoms


                                            You must be stressed


                                            Take medication


                                            And get some rest





                                            I cannot think well


                                            Can’t find the words


                                            My memory slipping


                                            My speech gets slurred





                                            We’ll get a scan


                                            Since you insist


                                            If we find nothing


                                            Please don’t persist





                                            Don’t make me laugh


                                            Don’t make me cry


                                            It hurts to strain


                                            I don’t know why





                                            Your scan is fine


                                            By report today


                                            Incidental Chiari


                                            So they say





                                            Incidental


                                            What do you mean


                                            By a doctor


                                            I have not seen





                                            It is anxiety


                                            That makes you so


                                            The world is stressful


                                            I think you know





                                            I pulled away


                                            Gave up, or such


                                            Until the pressure


                                            Became too much





                                            I waded through


                                            The Internet


                                            Fearful of loosing


                                            What I had left





                                            It took some time


                                            To come to know


                                            My brain is hanging


                                            Down too low





                                            With every beat


                                            The fluid flows


                                            Deep in the brain


                                            To the opening below





                                            The rush of fluid


                                            Seeking release


                                            Finds cerebellum


                                            Which makes it cease





                                            The pressure spikes


                                            My head explodes


                                            It makes such sense


                                            Now that I know





                                            Working together


                                            We’ll find a way


                                            To make it better


                                            So I say













Comments
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by selmaS, Oct 17, 2008 10:10PM
I was looking forward to seeing what others thought of this poem.......sigh.

by eej1981, Oct 19, 2008 12:28AM
Wow - I'm in tears. I couldn't have said it better myself.

I don't know if this is what is wrong with me, but this poem really hit home.

by eej1981, Oct 21, 2008 08:42PM
Ugh - I still can't read this without getting emotional!

by selmaS, Oct 21, 2008 08:46PM
I know what u mean...I've been reading and re reading it since July and it affects me the same way every time.....there are times I just have to read it to remind myself that there r drs that know how I feel and that does make me feel a bit better.

by MSFEE, Oct 23, 2008 07:32PM
OH MY GOD !!!! A DOCTOR FEELS THIS!!! My heart started beating faster and faster as I read this. Selma thank you for finding this!!! Im printing and puting it on my wall in my bedroom, the bathroom, and the kitchen frig.

Sincerely.

by Stargazey, Oct 23, 2008 07:41PM
I feel the same it is an amazing poem. I feel a little better knowing there are drs. out there. Hope there is one here in Arizona.

by selmaS, Oct 23, 2008 08:04PM
Stargazey..this dr...Dr Oro is in CO.....I do not know of a dr in AZ but I am sure if u google u may find someone......I am traveling to get to an expert, drs that are familiar with chiari in my area do not see enuff over the year...just  don't cut it.

MSFEE- I am so glad that u were able to find comfort from this poem.....I keep reading it over and over...it just make me feel confident that I can find a dr that truley understands.

I met Dr Oro this past July and felt very comfortable in talking to him, and was willing to share his time and knowledge.....he has a great "bedside manor".....a very kind and gentle man.

by SharJ, Oct 30, 2008 05:02PM
Selma, Wow this poem says it all. I thank you for sharing it. I just explains how I feel. I am also going to print it out for myself and for my neighbor who just found out she has MS.  I agree with Stargazey it is an amazing poem.


Sharj

by selmaS, Oct 30, 2008 05:09PM
SharJ- I am so glad that it is affecting people the samae way it did me, and I hope it gives everyone hope that there r drs out there that do understand....we all just have to find them.

"selma"

by Shane99, Nov 19, 2008 05:26PM
Yeah, I'm like a "big tough guy" and this song makes me teary-eyed every time I read it.

by nanal800, Nov 20, 2008 05:27PM
Dr. Oro's poem is quite moving Selma.......thanks so much for sharing it with us......it DOES prove that there are people in the medical field who can and do empathize with us.......even as patients.......aven........as people !.....It was more than refreshing to find out ! Thanks again.........peace and love.........Norma

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