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Stage 4 Lung Cancer with brain metastases

Feb 02, 2008 - 6 comments
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cancers

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Lung

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brain

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Tumor

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chemo

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crazy

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Sent by  Penelope504 1 minute ago February 2, 2008
I turned 64 a few months ago and I must still be loved.  A year ago I was given about 4 months to live with a diagnosis of stage 4 lung cancer with two metastases in my brain.  I did not have any recognizable symptoms until I had a major seizure and was hospitalized, given CAT scans and x-rays.  The lung tumor didn't show but I was sent to a different island with more sophisticated imaging equipment.  Following diagnosis, Gamma Laser knife surgery was performed.  Chemotherapy was also recommended, in my situation, carboplatin and gemcitabine.  In addition, I was given steroids (dexamethasone) to make the chemo more tolerable.  While the chemo was not nice since I had no appetite, my hair was falling out and my skin hurt and body ached, it was the steroids which were intolerable for me.  I felt totally crazy and wanted to bite and hit people.  The chemo clinic doctor did not acknowledge that I was becoming psychotic and, until I called the poison center, I had no idea what else was happening in my brain.  I fought verbally with the chemo clinic doctor who recommended I take Kytril to avoid nausea.  Kytril cost my insurance $4000 per month.  The chemo doctor suggested I use it regularly.  I asked for a referral for medical marijuana and said I would eat bananas instead.  The doctor did not approve and noted that it would only cost me $12.50 a month with my Rx plan for Kytril.  After two chemo treatments, my lung was examined again.  The tumor neither grew nor shrunk.  I refused to take Kytril and discontinued chemo but continued Keppra twice a day.  I removed myself from all steroids and limited use of diazepam and did my best to rest and avoid seizures.  I have a medical marijuana prescription.  My kids recommended mushroom capsules and ginger for my brain swelling and Waiora drops in my water.  Since these are not difficult to take and I like the marijuana, I have kept on this regime easily and haven't had seizures in months.  The MRI which I took the other day showed brighter tumor spots but the neurosurgeon couldn't tell whether it was because the tumor has spread or that it is just because the MRI dye had been changed.  I will have to await my next MRI to see a more valid comparison, I guess.  Since I am not on chemo, my oncologist discharged me.  I am trying to find an oncologist who will appreciate my treatment choices and help keep me well informed about other treatment options.  


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Avatar_n_tn
by BCC, Feb 06, 2008
Hi Penelope504,

I noticed that you have been taking ginger.  Did you know that if you take a higher dose of ginger that it may cure your cancer?  It works so fast and is so cheap, it is still amazing to me that it cured my cancer.  Your previous treatments and the tumor in your lung may make it less effective and more difficult to take though.  You seem to be real tough, so I could not hold back from letting you know about this option.  Hope you become another survivor.

BCC

www.geocities.com/cure.cancer/how_to_cure_cancer_with_ginger.html

Avatar_n_tn
by jewd0g, Feb 09, 2010
Penelope,

I am a 25 year old son of the best mother in the world who broke her neck 3 years ago and had her spine fused from vertebrae c2-c7.  She was supposed to be parylyzed but ended up with feeling and has been rehabbing up until the recent cancer diagnosis.  My mother is going through literally almost the exact same thing that you are.  She was diagnosed 8 months ago with stage 3b lung cancer which with radiation and chemotherapy was sent into remission.  However 4 weeks  ago she had a seizure in our bathroom and when she had an MRI they discovered 2 tumors in her brain.  Her oncologist who comes very highly recommended administered 15 radiation treatments.  The radiologist and oncologist are now talking about a treatment something equivalent to the gamma knife surgery.  She has also been taking 3x times daily 1-4mg dexamethasone which was reduced to 1 after the last radiation.  The thing that very much worries me is for the last week (5 days after her last of the 15 radiations) she has started to become very out of it.  They have also raised her dexamethasone to 2 pills a day.  I say out of it for lack of a better word but it is almost like she lost her words.  It very much seems she knows what she wants to say but her brain is stopping the word before it gets to her mouth.  The doctors seem to think it is either the steroids or swelling on the brain but say just to let them know if it gets worse.  Well as her only son I am obviously very concerned and  If you or anyone has any recommendations other than smoking some pot and ginger please share them because seeing her like this is killing me!!!! Thanks and hope everything goes well for you.  keep me updated

Avatar_n_tn
by jewd0g, Feb 09, 2010
Also what did they do at the posion center? My mom had her blood levels checked and an mri and catscan since her this recent bout of "lost words" but the doctors did not say anything.  I am just trying to see if it was the levels of dexamethasone that you said were "intolerable and made you psychotic".  Thanks again

Avatar_m_tn
by geri174, Jun 11, 2010
Hello! I am in the same situation with my mother- she has lung cancer with two metastases in the brain. Now she is going to 16 radiotherapy procedures for the metastases. Besides she takes some herbs, but no other medecine, because she can't stand taking anything. She lost a lot of weight and breaths very hardly. We are looking now for some alternative medicine, which can strenghten her immune system. Can somebody recommend something? Thanks a lot!  

Avatar_n_tn
by cd47, Sep 01, 2010
Hello.  My mom has stage 4 nscl lung cancer.  she had chemo therapy four times every three weeks and barely survived the last bout.  She initially presented with a brain tumor (before we knew she had lung cancer) that affected her left side -- she was barely able to walk.  She had the gamma knife treatment and decadron that worked to bring her walking back.  she then had another mri and 3 tumors were found.  she has had full brain radiation.  she is very weak, she is walking with a walker, words are missing and difficult for her to recall.  she is very fatigued.  she sometimes throws her head back to talk as if she has brain damage.  we are at a loss of what to fully expect for her diagnosis.  i am not sure she will be able to live independently again (i took care of her for 5 months, her sister is here for 6 weeks and then ?)  i question this full brain radiation if it does this to the person.  side effects were very much played down and was the only option we were given.  she is making all her own medical decisions and then we have to support them.  at what point do we enter with decisions as she is a very proud women and always in charge of herself.

Avatar_n_tn
by medadome, Sep 01, 2010
go to youtube - search - run from the cure

i know you may be hesistant at first to believe
most mainstream doctors will not admit to it.

but it is the truth. i know each of your pain thats why this is not
a lie. you have to try or they will die






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