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Still suffering from MS symptoms

Oct 25, 2007 - 2 comments
Tags:

Multiple Sclerosis

,

ms

,

numbness

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Numbness and tingling

,

Nuer

,

nuerology

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Rebif

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uncoordinated

,

lack of coordination



I'm 2 months and 3/4 past the date of my first MS diagnosis. They think my first episode was 6 years ago when I had severe nystagmus and vertigo at age 25 years.  I've been taking Rebif for 6 weeks now. I'm on the 22 ug dose. I'm feeling down because my left side numbness and my left side cordination is not back to normal. The Doctor said that once I was done with the steroid therapy (2 months ago) it would be back to normal and that it would show up only with fatigue, heat and sickness. That is not the case! I hate being reminded continuosly that I have MS. It makes me wonder if I have the bad type of MS and not the relapsing remittint type. The Rebif is bogging me down.. and I have 2 toddlers that are energetic and need to be followed upon 24/7.

I'm just tired and it helps me to write down my thoughts and let out my feelings! For all the MS diagnosed people, YOU ARE NOT ALONE!


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by worried houswife, Dec 08, 2007
your not alone.  I do not have a diagnosis yet but keeping up with my 4 year old while fighting my symtems is torture sometimes.  Hang in there.  

worried houswife

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by JustBecause1903, Apr 13, 2008
My heart goes out to you.... I have four children and they are hard work in the best of health, let alone when things go pair shape ~ writing in my blog has been my life saver this last few months as I've become 'limited' by my body again.

Give yourself time to grieve too, I know that may sound strange but being diagnosed with any life changing disorder/disease can be very emotional. Even with relapsing/remitting you need to give yourself time to heal in between times.

Best Wishes
Jacqui

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