May 23, 2012
Somehow it has been over 4 months since I wrote here. In that time I went on an awesome vacation, have made some great strides in PT, got rid of my AFO - thank you Bioness - and have been able to be more mobile. My biggest goal is to be able to walk Jack, my golden retriever and am going to attempt that this weekend!~
I am trying to be as positive as I can and my Physical Therapist helps with that a bunch - she will have me do something and when I can she just gives me that look of see I told you - you are getting better! But it is such small strides it gets frustrating. But I guess making any kind of improvement is better than none.
The hardest part is the independence. I am fiercely independent and I have to ask for more help which makes me nuts but in order to save strength for when I need it I ask. Getting a wheelchair for the airport on my recent trip was one of the hardest things I have ever done - aside from hearing the words "you have MS" But I did it and boy was it worth it. I got home not exhausted and will do so in the future. sometimes it DOES NOT pay to be stubborn! I learned that the hard way - Walked the airports on my way to vacation - never again!!!!
Now everyone I know wants me to go to every amusement park out there so that they can "pimp" me out for the front of the line on rides! It is hysterical but laughter is a good thing!
Anyway needed to write some of this down. Summer is here and hopefully the heat will not be too awful for me. We shall see. Taking this thing day by day and week by week, but I guess thats all we can do isn't it!