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Surgery or No Surgery

Feb 15, 2008 12:54AM - 1 comments

My only daughter, Hannah was born with Tetralogy of Fallot.  She is now a little over a year old.  Her heart condition was diagnosed upon birth, and my husband and I were advised by the pedia-cardio that total correction via open heart surgery would be needed at age 2 or 3.

Because of the risks involved, my husband and I are wary about the open heart surgery.  Is there even the slightest possibility that the hole in the heart can close on its own, in the case of TOF?  Was there any TOF case in the past that the heart's hole closed on its own?  Is surgery the only way that TOF can be resolved?

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by mau789, Feb 20, 2008 05:05PM
Hi Yalena
Dont know whether you got my email ,but we were told the same thing for matthew, surgery at 2 years old but he had some tests at 6 months old and when they saw him he was blue and having fits, I thought it was temper because I had not been told about these spells, they kept him in and did surgery a few days later. he had the hole closed ,artiery widened and because of the surgery that caused a leaky valve which is normal i think for that surgery .The consultant always said that he may need surgery for the valve but when an adult, but at 13 he is close to being a adult and they are now saying it does not benefit to wait any longer for surgery so he has just had open heart surgery for his valve. I .have just asked our consultant about his hole and the patch on his heart he said when he was a baby the hole was very big but as i understand the patch was put on and now the heart has grown around it and now it it is only a small hole ,so there will be no problems with the patch He will need another valve in the future but not for a very long time and now they are working on micro surgery so next time it will not be open heart surgery i hope this helps u a little bit but email me if u want to ask anything. hope everthing goes well
   maureen
   mau 789

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