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Woe is me!

Mar 03, 2008 12:45AM - 1 comments

Ok, I'm living in a state of "woe is me". I shouldn't be, I know I have it pretty easy. So long as I take my neurontin, it seems, then my throat stays good, the shocks stay away (for the most part), and I just suffer from the odd mild muscle cramp/spasm, the 'jerks' and some strange sensations (bugs on skin, stepping on squishy stuff, etc).

But I'm frustrated (again). I'm so incredibly frustrated with not having a diagnosis, without any hope of soon having a diagnosis. I don't know when I'll see the neuro (in the process of referral now), don't know when I'll have the LP (don't think it will have any answers anyway), and I'd like at least SOME indication of what may come in my future.

I'm exhausted with battling. I take breaks from all this, when I need, but I don't need to now, but I'm stuck on pause, until I get some letters with appointment dates on them.

On top of that, I've been seperated for 7 years from my ex, but we never got divorced. Now, I've also been engaged for 5 years, and now we've decided we want to actually get married this year. The problem? The problem is that, I'm trying to sort out this divorce stuff, and how long it will take...without knowing that I can't set a wedding date. The problem with finding out how long it will take? I moved to another province, and can't seem to find out where I have to start the divorce proceedings. Saskatchewan, where I live now, says I have to do it back in BC. BC says I have to do it here, and I can't get a straight answer. If I could afford a lawyer, I'd do it that way, but I can't.

Dan's been very patient, and very supportive, and now I just want to make him my legal husband, and apparently it's going to suck 1/2 the life out of me to do it. ARG!

So, there's my whine for the day/week/month (we'll have to see how the rest of the week/month go).

Basically, I'm soooooo frustrated, and no one has any answers, not many thoughts, and no ideas! I barely even fit into the MS catergory...but then I barely fit into any catergory, so here I sit, with MS being the closest thing to an answer...for now.

Christine

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by Daysie, Mar 03, 2008 10:17AM
Hi Cristine

I am sorry that you are feeling so frustrated today.  Sometimes we can only deal with the things we actually have control over.  Get the Divorce kit from Chapters and call your local court office to instruct you on what to do.  Most lawyers will give you a free over the phone consult. Start there. Give Dan a chance to be there in every way.

I am also going through the dx process now for 3 years.  On days that I feel good I tell myself that I don;t have MS and on days that I feel bad I get scared again.  I know how frustrating this is, especially if we have to deal with Neuro's that are not committed to finding out what is wrong, and treat us like head-cases.

I am seeing a new GP today and hope that she can help me sort this out.  I am hopeful, but have been hopeful for 3 years and it has gotten me nowhere!

SO be frustrated friend.  But don't stop telling someone (us or a lovedone) how you feel.  We need all the support we can get.
Drop me a line if you wish to discuss anything.  I am in AB and we most propably are dealing with the same healhcare system that make referrals 6 months down the line GRRRRRRRRRRRR.  And then when you get there your symptoms are gone or deminished, so they look at you like you are making it all up.  GRRRRR.

Sorry Cristine, I went on my own rant.  I am here for you together in our frustration.

Your Prairie Friend
Daysie

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