Jan 17, 2009
I wanted to clarify myself here and what my feelings are as a part of this community. I have a history of autoimmune thyroid disease as many know - but I am a member here - just as we all are.
Listening to many posts on the board I feel I have alot in common with many - especially when I was at my absolute lowest. I read the "fear" in so many posts - especially with new members, and I clearly remember my first day for the exact same reasons - like them............ I needed SUPPORT and COMFORT.
At my worst - I lurked desperately all over the internet to find "someone" who would understand what I was going through. I found it here and it brought me to tears reading "others" are out there like me. I'm not crazy....... it is REAL!
I remember my first response off my first question. "WE ARE HERE FOR YOU" - "WE KNOW WHAT YOU ARE GOING THROUGH." Those two simple sentences have stuck in my mind and will remain there forever.
As time past and I started getting the resources on WHY I was in such bad shape - I developed a system of how to overcome these symptoms of this terrible disease - I am now plague with for life. In addition - I gained the knowledge of understanding I was an individual and what may work for one - may NOT be right for another. I found this out simply with trial and error and a willing doctor that worked with me.
I learned about ME.
Doing that and getting healthier little by little - I gained more strength to FIGHT for ME to get even better. I found the "will" to find doctors I KNOW now work WITH me and help me understand who I am with this disease.
Do I have the answers for you? - I doubt it - but I want to share the experiences I had finding what works best for me. Am I ridden of my disease? - NO - I never will be. But the most important thing.... - Am I better than I was? - YES - Dear Lord - I AM.
Now - because of me finding MY individual treatment plan- (which for SOME is not the "best" plan) I fall into a mix of controversy. Have I searched websites that are looked upon as "less" than medical journals and resources? YES - YOU BET I have - and still do.
Some of those sites have helped me understand "why" I feel better with my treatment not because of studies or medical journals, but because of patient experiences - as I want to share with you - here at MH.
Look, I am NOT an advocate of any CERTAIN treatment. I don't believe one way is best. My goal here is you are packed with as much information as possible so you are not SICK ANYORE! I believe my goal here is exactly why Med Help was started - at least that is how I interpret the conversations I have with them.
What I do believe is this. Looking back on my first day here and the fear- worry- anxiety and ILLNESS I was in FOR YEARS was horrid. The compassion of a stranger hundreds of miles away sharing with me that I was NOT alone was priceless.
I accepted the invitation to be your Community Co Leader for just that. To support you - and offer whatever personal experience I went though to see if you can find (with your doctor) help to get you back being YOU.
That's all - no internet sales - no advocates for certain treatments - and certainly not acting like I KNOW IT ALL.
I won't be challenged any longer on posts or PM's on what my presence or roll is here as Med Help's Co Community Leader for thyroid- IT IS WHAT IT IS as I stated above - and that's that. If my plan of support needs changing - then by all means let me know publically or privately.
Writing this has been refreshing for me and I hope with your help - opening up suggestions on making this board grow with the times - (Like Live Chat with a doctor) helps empower you to find the right information you need to put "it" all back together so your life becomes enriched with feeling well again.