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Nephrostomy Forever

Jan 28, 2009 - 0 comments
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nephrostomy

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kidneys

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pains

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talking

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sleeping

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nephrostomy tube



Well folks I have not been on here in a while! I am doing ok on 0126 I had another cysto retrograde on the left kidney! It began to back up some so they went in and cleared it out. I have refused any stents again ever. I had to fire the JHU Doctor he believed that the Whitaker test proved I am cured. Do you know how many times I have heard that same thing. Good thing I saw a nephrologist who advised me that I am not cured. That at this point they need to manage my kidney and that taking the nephrostomy out would be a mistake. So I fired the JHU Doctor because he wanted to take the catheter out. Back to my original Doctor once again. It seems that just by taking a break from my first doctor allowed him and me to see things differently. He has agreed with my PCP finally that the nephrostomy is the best way to go about this. So now I have to get a change of the catheter once a month. I am ok with it  I knew that this day would come. I did not get upset at all because I have been doing better!! Life began again when I got the catheter placed. I started my own travel agency online due to the fact I can not work outside of the home ever again! For those that are like me and shop online I have a site which will connect you to 600 retail stores. This has kept me very busy and really kept my mind off of the nephrostomy. I dont believe in staying stuck and feeling sorry about something that is helping my -life be better! I still have pain in my back and legs but I dont get alot of infections now which is good. I have not had to have a inpatient stay since November so I feel great about that! There are some down sides no showers no baths with the water above a certain point. I have mastered how to bathe, how to clean the wound and how to give my daily injections. It could be worse and Jolly I keep you in my prayers man! I remember what you told me! I am on facebook for those that want to reach out beyond this. I am under Anna Johnson! I love FB it allows me to be just Anna. It also allows me to reconnect with folks I have lost contact with! So if your out there you can find me there most of my days!!LOL And some nights to I have a problem sleeping even with sleep meds! I am able to drink water now and not feel like it will hurt when I go to the ladies room! But I also drink emergen-c with my water four packets a day help my immune system and helps my energy! I also get b-12 shots to help with that every month. I am even now allowed to drink Red Bull I drink that in the morning to get me going!!! I am very pleased with this new change of events. I have more energy for my sons. Driving can be a little bit of work but I manage to do somethings I had not done in years!! So anyone that has stents and it is not working for you ask about the nephrostomy it is not so bad! Mostly I spend my time making people of all age groups aware of taking care of their bodies!! I do this on FB by talking about my condition in a positive way. I hope that something I say helps people to understand illness and how you can reclaim your life and do things! I am also in school online which is fun to get my college degree would be an honor! I just take it day by day some days are better then others! But you have to just keep moving. For those that can travel and are interested in doing so check out my little site it is cool! http://www.ytbtravel.com/charbie28! There is something for everyone on there even if you can not travel. There is plenty for everyone. Remember if you are sick focus in on all your dreams whatever they are just go do it. We dont know when we may not have time so get everything while you can!!! I Love You Guys you all helped me through some hard times. So please if anyone needs to talk I am here for you. Just as I have had the wonderful oppurtunity of leaning on and hearing the stories of so many others who are suffering. I am also finally going to see a Pain Management Doctor finally! I think that will really get things going for me. Just learning how to take great care of yourself is so important! Love You All Charbie

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