anwaar's Profile
Previous
|
Next
Will Be Travelling
Mar 06, 2008 07:39AM
- 2 comments
Tags:
Tags:
Dear Members,
(Photo taken of sunset in SC last year)
I wanted to thank each of you for the support you've kindly given, and hopefully I've been of support to some of you as well.
I am leaving today and will most likely not return until the 18th of this month. My trip may be extended but I will definitely be back for my March 28th appointment with the hepatologist.
Given the fact my biopsy results show no significant fibrosis (0 -1), I've chosen the watchful wait (at the moment). I talked briefly with the nurse practitioner again yesterday - she advised my biopsy result is what might be found in a person without HCV. Unfortunately, with the exception the virus exists in me.
Can I keep my liver healthy and for how long? None of us can answer that here and doubt that the specialist would venture a guess. He is all for a 2b to treat and move on. I'm not as concerned about the virus (at this point) as I am about the effects of treatment on my healthy body. Other than my blood work showing a VL present, I have no symptoms of the virus. I would like to wait to see what the future holds - perhaps a treatment with less damaging side effects. (Perhaps this is a pipe dream?) This decision is not set in stone. I'm looking forward to discussing this with the specialist on the 28th, at which time additional labs will be drawn for vl and whatever else he deems necessary.. I've also listened to each of you and I will keep your thoughts and opinions in mind and will factor those in as well when I finally get his views and look at the whole picture.
A few of you have shared privately your struggles relating to this virus, touching my heart. It is difficult to come here without creating bonds. Hopefully I will be able to check in a couple of times during my absence, if not...
Blessings To All,
~Anwaar
(Photo taken of sunset in SC last year)
I wanted to thank each of you for the support you've kindly given, and hopefully I've been of support to some of you as well.
I am leaving today and will most likely not return until the 18th of this month. My trip may be extended but I will definitely be back for my March 28th appointment with the hepatologist.
Given the fact my biopsy results show no significant fibrosis (0 -1), I've chosen the watchful wait (at the moment). I talked briefly with the nurse practitioner again yesterday - she advised my biopsy result is what might be found in a person without HCV. Unfortunately, with the exception the virus exists in me.
Can I keep my liver healthy and for how long? None of us can answer that here and doubt that the specialist would venture a guess. He is all for a 2b to treat and move on. I'm not as concerned about the virus (at this point) as I am about the effects of treatment on my healthy body. Other than my blood work showing a VL present, I have no symptoms of the virus. I would like to wait to see what the future holds - perhaps a treatment with less damaging side effects. (Perhaps this is a pipe dream?) This decision is not set in stone. I'm looking forward to discussing this with the specialist on the 28th, at which time additional labs will be drawn for vl and whatever else he deems necessary.. I've also listened to each of you and I will keep your thoughts and opinions in mind and will factor those in as well when I finally get his views and look at the whole picture.
A few of you have shared privately your struggles relating to this virus, touching my heart. It is difficult to come here without creating bonds. Hopefully I will be able to check in a couple of times during my absence, if not...
Blessings To All,
~Anwaar
Anwaar,
I was just wondering where you were as I have been off and on med help lately, getting back to life a bit after tx. (I'll never fully leave tho!!!)
I think your approach is good for you, no damage yet, etc. I believe triple therapy, 8-12 weeks for Geno 2's, will be out within the next 3 years (so does my very credited Dr., head of research.) Perhaps sooner. He said he'd never treat me for 48 weeks if this round didn't work. It is a VERY hard tx :( Even us at 'only' 24 weeks. Had I not been stage 2/3 I'd have waited also.
You are young, so take very good care of that liver until you decide to treat. Some are stern in 'treat now', others are okay with the 'wait and watch' approach, so you know you have all sides of the coin. As the newer drugs aren't far off, I think you'll be okay, whatever you choose.
This forum IS what got me thru it all. What a wonderful place we have and I have never seen one like this for other illness, disease. None the same. Yes, you get attached to people via a computer! I have met several and made some good friends thru here. Good people here!
We'll all be here when your back and when you treat. Take care and live healthy :)
Lauri
I was just wondering where you were as I have been off and on med help lately, getting back to life a bit after tx. (I'll never fully leave tho!!!)
I think your approach is good for you, no damage yet, etc. I believe triple therapy, 8-12 weeks for Geno 2's, will be out within the next 3 years (so does my very credited Dr., head of research.) Perhaps sooner. He said he'd never treat me for 48 weeks if this round didn't work. It is a VERY hard tx :( Even us at 'only' 24 weeks. Had I not been stage 2/3 I'd have waited also.
You are young, so take very good care of that liver until you decide to treat. Some are stern in 'treat now', others are okay with the 'wait and watch' approach, so you know you have all sides of the coin. As the newer drugs aren't far off, I think you'll be okay, whatever you choose.
This forum IS what got me thru it all. What a wonderful place we have and I have never seen one like this for other illness, disease. None the same. Yes, you get attached to people via a computer! I have met several and made some good friends thru here. Good people here!
We'll all be here when your back and when you treat. Take care and live healthy :)
Lauri
Hello Lauri!
I have had work/business and family matters to attend. I am well, and have attempted to put treatment decisions and everything HCV out of mind until this week. Well, actually I was suppose to have blood drawn last week but postponed it until early this am.
Thank you for sharing your thoughts (and I do like your thoughts on this!) I will take good care of my liver as you suggest.
I agree with you, this is a nice forum and have had some pleasant exchanges both on the forum and in private messages here at my profile. It is a fine group of people, however sad what has brought us all together. Not conversing before on a personal level with people other than my family and friends with whom I'm quite close ~ I can see where a closeness develops in such a supportive environment. Honestly, I'm not sure if my sensitivity and deep emotions can handle such ties that inevitably develop, knowing there's a rare opportunity meeting the person(s).
Considering myself intuitive, and taking the time a couple of months ago to read here extensively, I sense some solid close relationships between members and wonder how difficult the transition is back to their 'real' lives, once completing treatment. We all come from different locations and I get the feeling from reading that members actually put their lives on hold so I guess the bond here is (or can be) crucial. That is one consideration in my leaning toward waiting. I'm anticipating a shorter and more reliable treatment available perhaps in the next five to seven years. Once treatment is imminent, I will most likely explore live support groups as well as this fine community. Knowing that would entail getting out of my cozy environment such as this provides, and going somewhere ~ well, maybe that is a way to continue to push myself. I'll see when I get to that bridge what will be best. Medhelp has a new feature that shows when a member signed up and it saddens me to see that some members have virtually spent months (and some years) here, which indicates perhaps they're re-treating. :( It appears some are just compassionate and kind, deciding to stay to give back support and knowledge. I find this whole community fascinating.
I will keep you informed via the forum in what the doctor suggests. I see him Friday afternoon. If my decision is to wait, I will continue to stop by once a month or so and say hello and review the Health Pages and skim through the threads for information. I did sign up to have the clinicaloptions.com send HCV related topics to my email address as well.
Thank you so much for your support and kind words, Lauri. Please know, you continue to remain in my thoughts. Continue to look up to that beautiful sky~~.... and keep that sweet loving personality of yours active!!!!
Anwaar
I have had work/business and family matters to attend. I am well, and have attempted to put treatment decisions and everything HCV out of mind until this week. Well, actually I was suppose to have blood drawn last week but postponed it until early this am.
Thank you for sharing your thoughts (and I do like your thoughts on this!) I will take good care of my liver as you suggest.
I agree with you, this is a nice forum and have had some pleasant exchanges both on the forum and in private messages here at my profile. It is a fine group of people, however sad what has brought us all together. Not conversing before on a personal level with people other than my family and friends with whom I'm quite close ~ I can see where a closeness develops in such a supportive environment. Honestly, I'm not sure if my sensitivity and deep emotions can handle such ties that inevitably develop, knowing there's a rare opportunity meeting the person(s).
Considering myself intuitive, and taking the time a couple of months ago to read here extensively, I sense some solid close relationships between members and wonder how difficult the transition is back to their 'real' lives, once completing treatment. We all come from different locations and I get the feeling from reading that members actually put their lives on hold so I guess the bond here is (or can be) crucial. That is one consideration in my leaning toward waiting. I'm anticipating a shorter and more reliable treatment available perhaps in the next five to seven years. Once treatment is imminent, I will most likely explore live support groups as well as this fine community. Knowing that would entail getting out of my cozy environment such as this provides, and going somewhere ~ well, maybe that is a way to continue to push myself. I'll see when I get to that bridge what will be best. Medhelp has a new feature that shows when a member signed up and it saddens me to see that some members have virtually spent months (and some years) here, which indicates perhaps they're re-treating. :( It appears some are just compassionate and kind, deciding to stay to give back support and knowledge. I find this whole community fascinating.
I will keep you informed via the forum in what the doctor suggests. I see him Friday afternoon. If my decision is to wait, I will continue to stop by once a month or so and say hello and review the Health Pages and skim through the threads for information. I did sign up to have the clinicaloptions.com send HCV related topics to my email address as well.
Thank you so much for your support and kind words, Lauri. Please know, you continue to remain in my thoughts. Continue to look up to that beautiful sky~~.... and keep that sweet loving personality of yours active!!!!
Anwaar
Post a Comment