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Drug trial update

Nov 19, 2012 - 1 comments

19 November 2012

I have decided to stop writing about every single hospital visit that I make as they are usually much the same and do not make very interesting reading.  However I will just add in occasional updates if anything occurs that I think may be of interest. The main thing that has happened is that the drug trial has been extended for a further three years until 2015 which I hope is good news.   I am guessing that as long as there are no adverse side effects the pharmaceutical company are going to look after us for a long time as they will want to see if there are any long term side effects for their guinea pigs! The other significant change is that they has withdrawn the strongest strength 40 from the trial so we are all now on strength 20 or 10 but do not know which. One day we may find out but none of us from this stage of the trial are on the placebo. I have not had a relapse since last year so fingers crossed this continues. I still get very regular fatigue which is often related to being very active and overdoing things.. but can also come unannounced for no reason at all.  I just know when I am really tired I have to rest and that fighting it does not help.

I am getting on with my life, not letting MS rule it and have not found the need to come on the forum regularly mainly because my time is taken up with busy family times, but also a conscious decision to put MS on the back burner when possible.  I have joined an MS Therapy Centre in the last 6 months and see a physio from time to time as well as a reflexologist/aromatherapy masseur and attend a weekly physio exercise class. I am also enjoying going to the theatre more frequently to see plays and opera and I have taken up singing lessons again. So life goes on, my eldest son 22, achieved a distinction in his Masters Degree and is now back home and my two younger kids are applying for university and music school....and they'll keep me very busy as my hubbie is often away on business. That is all for now and I cannot promise when the next update will be, but even if I may not write much regularly I still pop in from time to time. xxxxxxx

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by shoshin, Nov 25, 2012
Just wanted to say I'm glad to read that the trial is going well. I hope the trial drug will keep your MS at bay and that you will continue to enjoy so many good things in life.

sho

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