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Tardive Psychosis and Tardive Dysmentia, Recovery Completed, Back to the Real World, Neurological Recovery to Complement My Mental Recovery
Feb 10, 2009 03:17PM
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Once again in reading this please understand I am under study for these criteria. There has been much misinformation posted on the web about them. As with any "unknown" it is always better if they are understood. I understand them in having experienced them. But with the Clonidine (Catapres) patch applied, the Zofran at a titrated dose throughout the day and the rhodiola at a decent dose, they are in mitigation. These are all anti-Parkinsonian medications or treatments. The dissociation is gone. The loss of cognition improved markedly. The tardive tourretteticism strongly mitigated. What you would have seen in me before was a person with full Parkinsonianism who could not understand things, would be muttering and talking to myself and went into bizzare states of dissociation. With the marked recovery from schizoaffective disorder from the glycine, it became clear to the research psychiatrists it was of a neurological etiology and with the fact that the dissociation and loss of cognition came on during the wide variety of spasms during the advanced tardive dyskinesia I have, the "controversial" criteria became factual in one person, which is myself and that will be documented and I will be among the authors of the case study so that it can be further studied, prevented and treated.
I just opened the blinds. The dissociation from the tardive psychotic depression/dysphoric mania has lifted. The "underworld" I lived in of the Victorian era is gone. And in time for spring its likely I will no longer be homebound because of its effects on dystonic spasms. Alpha blockers such as Clonidine treat cognition in studies. Zofran treats psychosis from Parkinsons' and is an adjunct for schizophrenia. Rhodiola treats tardive dyskinesia. So as for these two "unknowns" once they understand them better, its clear why these treatments worked in me and very well may in others.
And as I advance towards going out and about I may do many of the same things you do. My life is not that interesting in that sense so why detail. But more of interest I will be able to conduct my advocacy on a larger scale about the glutamate antagonist antipsychotics in Phase II FDA study. And would like to promote the idea of investing more time, money and energy into all research on antipsychotics to be on new treatment modalities, especially the glutamate antagonists, something all provider agencies I contacted supported me on. Because after having "awakened" from a full state of Parkinsonianism and back into the 21st Century, I'd like to see science "awaken" to the idea that a full recovery from schizophrenia is possible. And the only way to find out is research so that everyone can have the mental recovery I had without the neurological disabilities. Something I think everyone would support. Now they just need to back up their words of support with action. I will not be silent and you should not be either. A full recovery from schizophrenia or other psychotic disorders is something we'd all like to see. And I don't "believe" its possible. I live it everyday. And in the near future perhaps you will too....
I just opened the blinds. The dissociation from the tardive psychotic depression/dysphoric mania has lifted. The "underworld" I lived in of the Victorian era is gone. And in time for spring its likely I will no longer be homebound because of its effects on dystonic spasms. Alpha blockers such as Clonidine treat cognition in studies. Zofran treats psychosis from Parkinsons' and is an adjunct for schizophrenia. Rhodiola treats tardive dyskinesia. So as for these two "unknowns" once they understand them better, its clear why these treatments worked in me and very well may in others.
And as I advance towards going out and about I may do many of the same things you do. My life is not that interesting in that sense so why detail. But more of interest I will be able to conduct my advocacy on a larger scale about the glutamate antagonist antipsychotics in Phase II FDA study. And would like to promote the idea of investing more time, money and energy into all research on antipsychotics to be on new treatment modalities, especially the glutamate antagonists, something all provider agencies I contacted supported me on. Because after having "awakened" from a full state of Parkinsonianism and back into the 21st Century, I'd like to see science "awaken" to the idea that a full recovery from schizophrenia is possible. And the only way to find out is research so that everyone can have the mental recovery I had without the neurological disabilities. Something I think everyone would support. Now they just need to back up their words of support with action. I will not be silent and you should not be either. A full recovery from schizophrenia or other psychotic disorders is something we'd all like to see. And I don't "believe" its possible. I live it everyday. And in the near future perhaps you will too....
WOW you are an advocate. please please keep going. your doing great, and what you can do for you and others will be wonderful. I am beginning to think that my daughter may be living in a psychotic state and not even know it. She just thinks this is normal cause its always been this way. she is 29 but has severe mental illness since almost preteens.
Could you tell me when you illness started. and do you know why?
Could you tell me when you illness started. and do you know why?
I have been identified by my psychiatrist as having made a recovery on glycine, a glutamate antagonist in Phase II FDA study (for the official study google "Dr. Javitt, glycine") "as good as on any FDA approved antipsychotics or better". I have written my part of the case study which will be revised and rewritten by my psychopharmocologist and then published in a psychiatric journal. The unknown neurological criteria under study I discuss may be a seperate study or may very well be included. I am seeing a movement disorders specialist for that.
As for myself, I have schizoaffective disorder which is schizophrenia with a mood disorder. Schizophrenia and schizoaffective disorder are genetic. I would believe that to be factual because gene studies showed people with schizophrenia to be lacking in glutamate transmission which glycine restores. I first started hearing voices (auditory hallucinations) at the direct onset of puberty at age 13. I had a decline in social functioning at that time as well. Those two symptoms are part of schizoaffective disorder. At the age of 18, I had a full breakdown and ended up being hospitalized. Once I started on medication I stabilized and was released. There were a few hospitalizations after that. The last hospitalization was for the Clozaril clinic which was partial day hospital. When that didn't work that was when I advocated to get on glycine. It can be administered under the care of a psychiatrist as an adjunct (additional) antipsychotic agent. I am the first person to recover with it as a primary (stand alone) antipsychotic outside of a controlled study. It cannot be administered with Clozaril as they interact. Other than that there are no specific interactions or concerns but like any treatment known or unknown must only be given under a psychiatrist's care.
Now as for the family member you mentioned they would do well to see a psychiatrist. And please remember the neurological disabilities I am under study for haven't been identified as criteria yet. And I may have had some form of dystonia or akathesia as a young person. They still have to find out. Current antipsychotics are safe to take and the risk of the known quantity of tardive dyskinesia can be monitored for as well as diabetes. Those two long term side effects should not prevent someone who needs an antipsychotic from taking it. But if you google "psychmeds123" you will find besides glycine, two glutamate antagonist antipsychotics in study. They have been shown not to cause this. I'd like more to be researched. And within 5-10 years they will available for everyone. I only hope that do to my awareness, advocacy and testimony that will be sooner than it might have been. But regardless, if someone has the symptoms of schizophrenia or any other psychiatric disability, self awareness is often lacking. They may not know they need psychiatric help but with medication and talk therapy combined they will be able to function much better and hopefully as treatment advances make a full recovery as I did.
As for myself, I have schizoaffective disorder which is schizophrenia with a mood disorder. Schizophrenia and schizoaffective disorder are genetic. I would believe that to be factual because gene studies showed people with schizophrenia to be lacking in glutamate transmission which glycine restores. I first started hearing voices (auditory hallucinations) at the direct onset of puberty at age 13. I had a decline in social functioning at that time as well. Those two symptoms are part of schizoaffective disorder. At the age of 18, I had a full breakdown and ended up being hospitalized. Once I started on medication I stabilized and was released. There were a few hospitalizations after that. The last hospitalization was for the Clozaril clinic which was partial day hospital. When that didn't work that was when I advocated to get on glycine. It can be administered under the care of a psychiatrist as an adjunct (additional) antipsychotic agent. I am the first person to recover with it as a primary (stand alone) antipsychotic outside of a controlled study. It cannot be administered with Clozaril as they interact. Other than that there are no specific interactions or concerns but like any treatment known or unknown must only be given under a psychiatrist's care.
Now as for the family member you mentioned they would do well to see a psychiatrist. And please remember the neurological disabilities I am under study for haven't been identified as criteria yet. And I may have had some form of dystonia or akathesia as a young person. They still have to find out. Current antipsychotics are safe to take and the risk of the known quantity of tardive dyskinesia can be monitored for as well as diabetes. Those two long term side effects should not prevent someone who needs an antipsychotic from taking it. But if you google "psychmeds123" you will find besides glycine, two glutamate antagonist antipsychotics in study. They have been shown not to cause this. I'd like more to be researched. And within 5-10 years they will available for everyone. I only hope that do to my awareness, advocacy and testimony that will be sooner than it might have been. But regardless, if someone has the symptoms of schizophrenia or any other psychiatric disability, self awareness is often lacking. They may not know they need psychiatric help but with medication and talk therapy combined they will be able to function much better and hopefully as treatment advances make a full recovery as I did.
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