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lost and alone

Dec 03, 2012 - 5 comments
Tags:

sick

,

TIRED

,

Fibromyalgia

,

Pain



I feel just lost and alone in my struggles to fight this disease. I'm so tired and angry that after all these years of dealing with fibromyalgia that no one really understand all that I go through on a daily basis. It's a struggle to get up everyday and just live. I've been feeling suicidal lately and I just can't seem to get it together. I'm just so tired of being sick. Along with the fibro I've been getting blood transfusions ever 4-6 months. Tomorrow I have to have another one.I'm just sick of the pain tired of being sick and tired. I don't know I just don't know!

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by wantlifeback336, Dec 19, 2012
Im so sorry.Ive been battling something drs cant find and absolutly no drug helps I lay bed ridden at 34.Have you tried having your hormones looked at? I heard it can play a part with that.Why the blood transfusions?

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by deja126, Dec 19, 2012
Hi I'm so very sorry that they don't know what is wrong with you and I know it has to be very frustrating as well. Have you had a bone scan done, MRI's, or basic blood test...And what kind of doctors are you seeing. What symptoms do you have...I'm not trying to pry I just want to see if you have any of the symptoms that I have...I haven't had my hormones checked that could be part of it...I need a hysterectomy and no doctor where I live will do it until I have my seizures under control for at least 2-3months....So while I'm bleeding to death I have to keep getting blood transfusions. My primary dr. just tried me on the depo shot to see if it will stop my period...So here's hoping to God that it works. Do you have a support system, someone to care for you when you can't care for yourself? I don't have a support system...I lay in bed crying off and on all day unless my granddaughter comes and talk to me or we play candyland or something...I've had fibromyalgia since I was 19 well that's when they finally figured out what was wrong...I went to so many different doctors that It had me so lost and confused. They when I turned 25 they found out that I had a rare disease that also affects the muscles that one is called polymyositis...In my early 30's I had two mini strokes and after those episodes I started to have seizures. Then they found out my gallbladder was diseased so I had that taken out and I also have a hiatal hernia...Now I'm 40 with all these illnesses with overwhelming DEPRESSION that no meds so far have helped me...The pain is excruciating....and now they tell me I have Osteoarthritis. You know when you get older and your body naturally starts to break down I keep thinking how will I make it if I walk with the aide of forearm crutches now, what will I DO THEN...Just a thought...




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by deja126, Dec 19, 2012
Oh I forgot to add, Happy Holidays...And I really do wish you find the source of your problems! God bless you! And you can always talk, vent, scream to me and I will try to always be there for you!

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by victorelapp, Apr 03, 2013
Hi. I don't know if you still look at this page but I would like to give you hope. After 20 years of acute fibromyalgia, psoriasis, gyno disease, chronic fatigue syndrome, poverty, depression, suicidal thoughts because of all this, I am getting better. How? By not giving up. By any time I could manage any kind of movement, however small, moving, so I didn't totally atrophy. By trying to spend the little money I had on the cheapest food that had the most nutritional value & working out how to overcome not being able to cook it (I live alone & have no family in this country). By fighting thoughts of suicide by thinking of the lives of others that I would destroy if I suicided.  By fighting death itself & believing that there is something better for me than this. I wish you & all fellow sufferers the best possible determination to believe that you will get better, even if it is incredibly slow. Please don't suicide.

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by victorelapp, Apr 03, 2013
P.S. I forgot to say that the arthritis foundation said on a TV doc that you can take 500mg Paracetomol 8 times a day with no side effects, so I did that for years. Otherwise I would have writhed in pain for years, stopped all movement, atrophied, & wouldn't have got any better. Don't listen to anyone who says not to take painkillers. It's necessary to be able to move; otherwise, you may end up in a wheelchair with muscle atrophy.

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