Need help finding what is wrong with my child

My daughter is 11. She spent three weeks in hospital and the doctors do not know what is wrong.  Symptoms are swelling (all over but mostly in legs), skin rash (red/purple on face), low c4, leg pain,  atypical raynaud's pneumonia ( lacy purple/ black skin and purple toes and fingers), blacking leg when bending over, von willer brands, chest pain, anxiety, temporary blindness and rabid changing in vision ( glasses), oral ulcers, and staph infections ( not MRSA), she walks and gets up like a old person, and sometimes it feels like her heart is going to beat out of her chest( BP is around 120/65  and pules is 120.

I just cant take the look of pain in my daughters eyes no more and her asking what is wrong with me and why aren't the doctors doing anything to find out.