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Concerning information from the doctor.

Mar 13, 2008 10:33PM - 1 comments

Greg received a call today, the day before shot 13 is to take place and a few days before we find out if he's UND or not. He was told to stop the extra riba pill in the evening because his white blood cells are down. The said they were down but not "way" down.  So Greg accepted the reducing of his extra pill in the evening.
The concerning part is he was also told not to take shot 13 due to this issue.  He asked if they had received the results from the 12 week VL test (which determines wether or not he will continue tx or not) and they said "NO".
I'm concerned as if he's UND by some chance, could this slow or in some way effect the results of his tx.
Greg's going to call the doctor tomorrow to see if maybe they can just give him helper drugs to combat the low cells.
Actually, I believe Greg's ready to just have a reason to stop tx.  This tx has been very hard on him.  He hasn't been able to work and is grumpy and dragging all day.  It's not like him at all!  I just want him to be cured.  I'm willling to put up with what ever it takes to get him through it, even his grumpyness.  By the way, to those who support someone on these Meds... it's brutal.  I don't know how they do it. When I feel sorry for me, i realize it must be so much harder for Greg.  Hence, I pray.  Alot!   *hoping Greg goes UND/SVR*  
Today we heard from a woman who calld us and said that she went UND/SVR using homeopathic meds after she was not showing any response to tx.  She said she went on a special diet and herbs, etc.  I guess it's worth a try while he's waiting on other drugs.  Greg said he doesn't feel like he wants to do the more severe tx right away if at all.  I'm thinking he really needs a break.  

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by hitherdither, Mar 14, 2008 04:10PM
Hi Pinks,

I'm sorry your husband is having a hard time. I'm a caregiver to my husband and yes it is tough.  My husbands blood dropped at week 4 and they gave him an aronesp shot that helped. He's taken two so far and he's on his 11th shot tonight.  He'll probably be taking another one in about two weeks because his last blood work says it's dropping again.  What's his stats so far?  We found out yesterday that he UND and that was for the week of shot 7. Good news for us. My husband is having a horrible time with arthritis. Basically bedridden. Only gets up to go to the bathroom and the doctor and that's pretty much it.  If he exerts himself the least little bit he's done for a few days and can hardly move.  His Nurse wanted take him off the drugs yesterday but he won't do it.  He said he's come to far now to stop, so we have 38 more weeks to go. I don't know how he's doing it.

Yes it's hard to be a caregiver.  Some days I really don't want to get up but I look at him and know he's going through worse. Take care of yourself.

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