All Journal Entries Journals

Adventures in Myelosuppression

Jan 03, 2013 - 0 comments
Tags:

infections

,

scared

,

respiratory

,

Adventure

,

Ins

,

Blood

,

kidney

,

red

,

bone

,

ms

,

spots

,

side effects



...and now I'm getting a respiratory tract infection. Excellent.

This may be due to the Zanosar, but I'm experiencing pretty severe myelosuppression (my bone marrow isn't really working). I have NO immune system. My ANC is below 100...WITH the infection...and it should be over 1800 normally, and increased with an infection, so I'm getting Neupogen. Had to get my room and my stuff sterilized and be put into a clean room basically until my ANC comes up to about 500. My red blood cell count is way down, but I'm used to that, since my kidneys are rebelling and not making enough EPO...so I'm constantly anemic, but I'm getting a blood transfusion now. I usually get Procrit for that, but now it's my bone marrow that just won't make red blood cells. My platelet levels are really low, too, and I have little purple spots. Sooooo frustrated...and I'm really scared. Like...they mentioned myelosuppression as a side effect, but really never explained how bad it could be. And with this infection, I could actually die right now, and on one hand that freaks me out, because I don't really actually want to die, and on the other hand I kind of do, but just to have all of this over with. That's just how I feel.

My dad had a PET scan today. Didn't get to talk to him to see how that went.

Post a Comment