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Welcome too my world of Decrum Disease
Feb 23, 2009 01:34PM
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Hi everyone and thanks for stopping by.
My home page is for Breast Cancer suffers. My mother passed away from BC after 1-partial mastectomy and one full mastectomy and being informed not to come back for a year after her last appointment (which was the follow up from the full mast.). The cancer had spread too far at that point and she had only 7 weeks to live.
I miss her dearly, she was my best friend.
My story is long but, I will cut it down to size. Lol.
I had been pretty much sick in one way or another with apparently unrelated symptoms my entire life.
Over the years I received many diagnoses from many Dr.’s.
Some where excellent Dr.’s, some where totally inept Dr.’s, some where caring and truly wanted to help but, didn’t know how… others and there are more of these than anything else... Dr.’s that treated me like a hypochondriac. Or a type of Munchausen’s syndrome … Or just plain looking for drugs!
Eventually I stopped going to the hospitals… I stopped going to the Dr.’s in 2007, and weaned myself off of 14 prescriptions, in July of 07 as well.
In 2008… after years of looking on the web and spending countless hours in many libraries… a nurse on this site helped me to locate all (or most) of my symptoms. Citing she has seen this many times. I followed her links.
Wow, was it an eye opener! So many answers to most of my questions! I finally had a reason for a great deal of my medical problems!
Many of my past diagnoses apply to having this rare disease! In one way it horrified me and still am horrified… but, I had already been living with it for at least the previous 18 years…. So, let’s just say…. It’s good to know what it is…. Finally!
I do take herbal meds, but, they are not for everyone.
So, I must make this disclaimer now:
You must consult your physician or medical professional before taking anything not prescribed! I am not a Dr. or a medical professional! I am only speaking about what has worked for me and others that I know. I will eventually have an herbal journal as well.
As with anything you are consuming… read about it, research it, learn what’s going into you in relation too other medical problems you have. Just because these are herbs does not mean they cannot harm you!
Today’s drugs started somewhere didn’t they?
We do not judge, belittle, irritate, berate, or speak negatively towards each other here. We are here to help and learn and yes, even sound off about our woes….Having Decrum’s is very hard to live with at this point in time for me so, I can totally relate!
About MedHelp: Also, I understand that allot of folks don’t like to see one person filling the spaces in their “My Friends” box on the home page and that’s understandable. I get tired of seeing me too! Lol I do warn you… I will be accomplishing allot over the next few weeks!
There are various ways to take care of this problem and it can be found at:
http://www.medhelp.org/posts/show/764256?personal_page_id=257
My Journals: If you click on the journals on my profile page, (second journal box down), and then click on “view list” at the top of the page… you will find various journals in which contain vast information and links to help you out. I have accumulated these through my own research and with the help of web-friends.
Please do not post in these journals! Send me any information you may want to contribute please. I will be more than happy to check it out and post it in the appropriate area.
On my profile page… at the top-middle, is another journal. Please put posts in there. This is where you can b*%#h all you want and no one will judge you! Or if you wish… share your good days with us! We all have them occasionally!
OR MOST IMPORTANTLY…ask questions!
I hope you can find some avenue of hope through the links and information that is provided.
I encourage you to submit anything new that may be out there in Web land or from any other source of information!
I do welcome anyone that wants to further their education on Decrum Disease and hopefully share any new information as well.
Sharon
My home page is for Breast Cancer suffers. My mother passed away from BC after 1-partial mastectomy and one full mastectomy and being informed not to come back for a year after her last appointment (which was the follow up from the full mast.). The cancer had spread too far at that point and she had only 7 weeks to live.
I miss her dearly, she was my best friend.
My story is long but, I will cut it down to size. Lol.
I had been pretty much sick in one way or another with apparently unrelated symptoms my entire life.
Over the years I received many diagnoses from many Dr.’s.
Some where excellent Dr.’s, some where totally inept Dr.’s, some where caring and truly wanted to help but, didn’t know how… others and there are more of these than anything else... Dr.’s that treated me like a hypochondriac. Or a type of Munchausen’s syndrome … Or just plain looking for drugs!
Eventually I stopped going to the hospitals… I stopped going to the Dr.’s in 2007, and weaned myself off of 14 prescriptions, in July of 07 as well.
In 2008… after years of looking on the web and spending countless hours in many libraries… a nurse on this site helped me to locate all (or most) of my symptoms. Citing she has seen this many times. I followed her links.
Wow, was it an eye opener! So many answers to most of my questions! I finally had a reason for a great deal of my medical problems!
Many of my past diagnoses apply to having this rare disease! In one way it horrified me and still am horrified… but, I had already been living with it for at least the previous 18 years…. So, let’s just say…. It’s good to know what it is…. Finally!
I do take herbal meds, but, they are not for everyone.
So, I must make this disclaimer now:
You must consult your physician or medical professional before taking anything not prescribed! I am not a Dr. or a medical professional! I am only speaking about what has worked for me and others that I know. I will eventually have an herbal journal as well.
As with anything you are consuming… read about it, research it, learn what’s going into you in relation too other medical problems you have. Just because these are herbs does not mean they cannot harm you!
Today’s drugs started somewhere didn’t they?
We do not judge, belittle, irritate, berate, or speak negatively towards each other here. We are here to help and learn and yes, even sound off about our woes….Having Decrum’s is very hard to live with at this point in time for me so, I can totally relate!
About MedHelp: Also, I understand that allot of folks don’t like to see one person filling the spaces in their “My Friends” box on the home page and that’s understandable. I get tired of seeing me too! Lol I do warn you… I will be accomplishing allot over the next few weeks!
There are various ways to take care of this problem and it can be found at:
http://www.medhelp.org/posts/show/764256?personal_page_id=257
My Journals: If you click on the journals on my profile page, (second journal box down), and then click on “view list” at the top of the page… you will find various journals in which contain vast information and links to help you out. I have accumulated these through my own research and with the help of web-friends.
Please do not post in these journals! Send me any information you may want to contribute please. I will be more than happy to check it out and post it in the appropriate area.
On my profile page… at the top-middle, is another journal. Please put posts in there. This is where you can b*%#h all you want and no one will judge you! Or if you wish… share your good days with us! We all have them occasionally!
OR MOST IMPORTANTLY…ask questions!
I hope you can find some avenue of hope through the links and information that is provided.
I encourage you to submit anything new that may be out there in Web land or from any other source of information!
I do welcome anyone that wants to further their education on Decrum Disease and hopefully share any new information as well.
Sharon
