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IN DENIAL?

Mar 14, 2008 11:34PM - 4 comments
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a word to the wise



To whomever wishes to read here:

Today I'm making one last effort at learning about whether I have a CHANCE at healing, at feeling even CLOSE to normal again before I give up. I have been to so many doctors, (now out of cash, out of money since I can no longer work, and close to being out of hope) who have done me NOTHING but damage. I left Rome in 93 to come here and VISIT a friend for 3 months... I had a very good life in Europe, healthy due to some pretty sharp docs who had a lot to deal with in my case. I'd had too many surgeries, a needless hysterectomy the most recent and had survived TWO surgical mistakes causing me to end up on the critical list for PERITONITIS. My doc told me in 93... "WHATEVER you do, liu, do NOT see a doctor there. You cannot afford another abdominal surgery and things have changed there since you left in 70. (I lived and worked in Rome for 23 years) and I'd hate that all we've done to get you to feel and look so good should be ruined"..... A belly ache, a sonargram, a doc who told me (SCARE TACTICS HERE) "it looks like cancer" and a hurried EXPLORATORY..... Before I entered the hospital, I insisted on signing a statement that I REFUSED A LAPAROSCOPY (surgery thru a camera after filling the abdomen with gas). Long story short... I was told to expect no more than 48 hours in hospital. I WAS IN SEVERAL HOSPITALS FOR ALMOST 5 MONTHS, I suffered a PERFORATED ILEUM, A TEMPORARY ILEOSTOMY, ALSO NEEDED REHAB TO WALK AGAIN). All of this to the tune of every single cent I had and... worse... the LIFE I had. I was 48 at the time and looked 35, happy and very very alert. Since then a myriad of problems and NO ANSWERS, no apologies, no possibility to sue (unless, of course, I died. IN THAT CASE MY SON WOULD NOW BE A MILLIONAIRE).
Beginning in 1998 I complained to my PRIMARY CARE PERSON *(I love this phrase here....) of weakness etc and muscle LOSS. ANSWER? I give you all one guess. THAT IS RIGHT! DEPRESSION> I was put on every drug known only to be sicker and sicker. Only thanks to a smart nurse in an ER who ran some blood work, did I find out I had Grave's. I began complaining also about my eyes NOT BEING ABLE TO FOCUS THEM TOGETHER and I was told after being able to read a CHART... Your eyes are FINE. I was put on PTU only SIX MONTHS after this blood work (do not have to room here for why) and did very well. I had gone down to 102 lbs and on the Propylthiuracil I gained and felt constant improvement. My doc said I still needed a "SCAN"... not to worry, very low dose radiation. Why? Because "you cannot remain on PTU all of your life. (A LIE.... I googled all of this and some people remain on it forever and do very well. THERE ARE EVEN REMISSIONS!!! AM I ANGRY? YOU BET!) After the scan I'm given the royal treatment and told the next day to please wait as the head honcho of the radiation dept needed to see me..... I'm told "You need RAI immediately or risk a stroke." My BP was ALWAYS LOW/NORMAL and even my primary said to this "YOU? A STROKE? But since she could not say he was WRONG (God forbid) I was given the referral and I swallowed TWO little pills and told I was given a slightly higher than normal dose of Radioactive Iodine. I AM STILL UNABLE TO RETRIEVE THE EXACT INFO ON THIS..... and I thought it was my RIGHT to get all MY MEDICAL INFO?! I IMMEDIATELY became HYPO (the opposite of Grave's which is HYPER) THYROID and my eyes? I am, in my opinion, 75% blind now and I look like a double cyclops. Those who have T.E.D. know of this and the pain and the watering and the stares from people... I researched R.A.I. the moment I had it done... TOO LATE. RAI is totally contraindicated to those Grave's patients with eye complaints.
It is over two years and I'm now unable to get out of bed except to sit HERE for typing (typing was a large part of my work in Europe) or to go to the bathroom. I can no longer cook, clean myself or my house, drive, work.... I am given 800 dollars a month and told TO LIVE ON IT. This is what I came back to? My son has NO INSURANCE and therefore no doctor.
For those of you who have no idea of the following.... In Europe we have what is called SOCIALIZED MEDICINE. The word Socialized is, to the American psyche, tantamount to the word COMMUNISM but BOTH are misunderstood and purposefully so. What does it mean? It means that we pay NOTHING FOR DOCS, NOTHING FOR MEDS, and for those with what I have now (incurable autoimmune diseases) you do not pay for ANY SPECIAL CARE YOU NEED.... BTW, this goes for those who find themselves in parts of Europe on holiday... you get sick? You are charged nothing for treatment you are NOT DENIED. Anyone KNOW THIS? The care in this country is SHAMEFUL... I am thoroughly ashamed and hurt that I came back here to Lose my life as I knew it. I am now very close to an end and if there were a chance of my recovering a fraction of myhealth, I would spend every second I could INFORMING PEOPLE... "A WORD TO THE WISE IS SUFFICIENT" I wonder how many wise will read this. ... I also have sluggish adrenals and my doc says WHAT IS THAT? So I ask... how about you refer me to a good endo? Response.... "They couldn't help you, as a matter of fact, I don't know of ANY WESTERN doctor who could really help you." So what do I do? Go back to Rome and live in the street? I am born here, my father fought for this country and died here and this is what I get? "YES! WE HAVE NO BANANAS"
So I have come here and will ask questions and see just how much "help" I can get. We are told NEVER TO SELF MEDICATE..... HELLO???! SOME of us are without other RECOURSE. I will make another entry according to how much I learn.... if anything, as I have researched for over a year now and can no longer retain much (HYPO SLOWS EVERYTHING DOWN.... EVENTUALLY CAN CAUSE COMA AND DEATH). If I am treated with respect and intelligence I will return to this and see how much I can share in the hope of helping others.

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by dsmcatlover, Mar 15, 2008 12:34AM
I am very sorry to hear you have had to endure so much pain in your life. I truly hope that with God's grace you will get better and outlive any predictions made for you so far and that your health improves but if that cannot be I trust you will find peace in the knowledge that you will be with the Lord and not be bitter. There is a reason for all things, we are just not privy to it all. You had a wonderful chance to go to another country and see Rome, Europe and to experience something that some of us will never be able to afford to do.  And I hope for your sake that all the pain and agony you have gone through does not leave you as bitter as you sound. I know that health care hear has become crazy and sometimes it is very difficult to find a good doctor. Or you do not feel like you have to have a medical degree and double check on your own care. It did not used to be this way. But I truly hope that despite the flaws of this country and government (health care included) you can see that it still is a great country to live in. Yes we do need reform in this area but I do not see it happening in the near future. Have you spoked with your church for assistance of any kind?

Please have Peace!!

by liuu, Mar 15, 2008 03:11AM
I know your heart is in the right place but... unfortunately my "bitterness" is really not what you seem to feel it is. I worked 18 hour days in Rome and when I got there I was with 2 black eyes from my husbands "beatings" and had to live with an aunt there who fed me and my child until I was able to get a job etc. I digress? As for the "flaws" here? A great country to live in IF you have health to work, IF you have enough money for rent, phone, gas and electric and IF you have HELP when you get sick. The government does not help the sick........ UNLESS you feel that 500 a month is enough? Why so low? Because I live with my son in a one bedroom apt (he is leaving soon and I go to a cardboard box) but they will raise it to 770. GEE WHIZ I can stay at the RITZ with THAT AMOUNT.
HAVE I CALLED A PRIEST? IS that your question? I could tell you of what my beliefs USED to be and how STRONG they were. Again, I digress so I'll get to your question. YES. I told him that I was losing my faith in my heavenly FATHER. That I was unable to go on like this without some consolation from my Church, from my Lord, from my HOLY MOTHER.
HE CUT ME SHORT... I was crying so stupidly, Forgive me dsmcatlover, but I THOUGHT I was speaking to Christ's advocate on Earth?????? He cut me short and said.... READY?? He said "Dear? Dear? Get off the pity pot!" I thought I HAD TO HAVE HEARD HIM WRONG and asked "WHAT, FATHER?" and again he said "You have to learn to get over these things" and hung up..... GET OVER THESE THINGS!!!!!!!!!!??????
dsmcatlover, when you write "so much pain in your life" you are looking only at words and answering them that you read before and have no idea what is so much more behind those words. Okay? Bitter? No, I am honest enough to tell you quite plainly that I'm simply disgusted and tired of it, of pain, of bedsores, of loneliness, of being abused constantly and then to come to this site and be told practically how LUCKY I've BEEN? THANK YOU. You just opened my eyes and I'm 60 and realizing how STUPID I REALLY AM and HAVE BEEN. May God bless you for this tonight..
I wish for you that you never know 16 years of constant pain, humiliation, abuse and degradation. STAY WELL AND HAPPY.

by stella5349, Mar 15, 2008 05:14AM
I am at a lose in your story. I am not familiar with the Europe medicine and how they treat their patients.  If I am reading your post right - the quality you recieve is better than here?

I beive the more resuearch you do the more you learn and can heal. If only doctors thought their patients had brains sometimes - they wouldn't be so quick to judge. Yet with the way society is on law suits and such........... they are running chickens too.

Good Luck and you will get better - take one day and see wht happens. I guess that is all we have.

by ChitChatNIne, Mar 15, 2008 10:25PM
Please, never lose site of hope bcz without hope there is no chance of optimism ..

Cheryl

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