gastroparesis

im in the same boat as you...recently diagnosed with gastroparesis...i can rarely eat...but medicines such as reglan may help but not much...my main problem is my appetite...it has decreased drastically plus im always depressed with this condition..im only 21 yrs old....i always had a acid reflux problem but this just doesnt seem to go away...wat are your symptoms?

I am with you all too.  None of the meds prescribed have helped.  I have so much pain in my abdomen I am not convinced that gastroparesis is my only problem.

Hello. I have had GP for over ten years now. I have had the gastric pacemaker twice, three feeding tubes, numerous rounds of botox, a pyloroplasty, balloon dilatations, port-a-cath for TPN and most recently a partial stomach and intestine removal. I am 39 years old and gastroparesis is a struggle everyday. I can relate to the abdominal pain and decreased appetite. Be careful with Reglan, it has a black box warning and can cause irreversible tardive dyskinesia. I would be more than happy to answer any questions because this illness can be scary. Especially if it is "idiopathic". If they do not know what caused it, how can they fix it???
Trish

yes my girl has been diagnosed with the same she is 37.. she has had epicodes about one a year maybe since 2003 for about a week..now her epicodes r about every 4 months  then in 2007 she was so dehydrated the doctor put a port in her n punctured her lung so she was in icu for a week...now she has epicodes about every 4 months this time it has and still is going on for three weeks..they r talking about the pacemaker...snooptrish it did not work for u..how may i ask do u deal with this and how do u survive the mental with the physical pain u must be going through..all my girl does is cry n feel like miserable and this time she has lost aprox 15 lbs..she is only around 109  lbs now..my girl started going to the em room at hospital n they were like not believing her as she was vomiting..kinda like saying she was there for drug enhancment..that was rough on her since she was vomiting and feeling miserable...we have gone to 5 different hospitals before the em doctors started being nice to her..  she does not take anything that was not perscribed..but the doctors in fl. seemed not to believe she had a problem..even though she has a gatrologist what is is wrong with em doctors or is this that rare that is not believed

well im the girl n today is day 2 out of 3 weeks i feel good able to eat a little pudding.  I will throw up for days n hav to go the er for iv hydration bcuz i can not even hold water down.... This condition ***** bad.... Sometimes abdominalpain is an issue but most of the time it is just vomiting for days this may b the longest time straight I hav been this way...Hope that this pacer they want to put n me helps but at times i think can help....21yrs is a young age to start. They doctors do say they is really not a cure or they really r just experimenting on us patients like we r rats to see if they is a solution for our problem.   I hear the pacer helps sum but  not all....Zofran seems to be helpful wen I can keep it down.. But I am taking every 8 hrs wen able to try to avoid livin like this everday..Love to share our stories so we maybe can help our doctors figure it out since they r not able but they hav sum much knowledge to try to help.  HAHAHA if u dont hav it u dont know what we go through.  I will show up at the doctors office leave them a sample of my vomit n insist that something b done cuz i state to them no one should hav to live like this daily keep postin ur experiences please it is helpful.. Waintin on my appointment time for the pacer.  if anyhting should arise ill post is sick or not.LOL to all who share this problem.. Good Luck!!!! Kepp ur spirtis high and keep sayin daily I will feel good today.N wen able to drink drinks lots to keep hydrated

Does anyone ever experience chest pain with gastroparesis?  Thanks for any help offered!

I've been having stomach and intestinal issues for 2 years as of this February and I understand your fear.  Today I was JUST diagnosed with idiopathic gastroparesis.  Reglan never helped me and it took several doctors to find meds that would provide some relief from what they were diagnosing originally as "IBS & Reflux". The only mix of meds that have helped me have been Nexium and Amitriplyn.  The Amitriplyn will make you groggy, but it's a med that you normally take at bed time to help with the misery of laying down.  I am no longer on the amitriplyn by choice and am taking 2 pills of Nexium per day as prescribed by my GI.  If you haven't tried this combo yet, it'd be worth it. I'd also use Zanax as needed, I noticed that anxiety and pain play off on each other and some times the Zanax is the only thing that could get my tummy under control!  My GI just started me on Boosbar (sp?) for the stomach tension, not sure if it'll help yet, but the goal is to have more good days then bad days so only time will tell! ;)

Over the counter recommendations:
Gas-X Chewables
Pepto Bismal pills for diahrea

Best Wishes!

Hi. I am 14 years old and have been struggling with gastroparesis for over a year. Currently I eat around 300 calories a day and i am only able to even try ensure twice a week. My stomach gets SO BLOATED!!!! it kills so now i am at home... missing school.. AGAIN. It ***** but i am so grateful that i can go to school at least twice a week. In 20 days im going to be flying to nationwide in columbus. They are not giving me a pacemaker yet but they are going to do alot of tests. I lost 20 pounds in the begginng of this and also had problems with dehydration. I take 2 capfuls of miralax a day, prevacid for my acid refulx problem, and many vitiamins. I always keep a positive attitude about everything but really.. its *****. I would love to hear from you about your life now!! :)

hey im new at this and i had no idea you cant write suck :) oops

Haven't been on here for over a year. I still have horrible stomach upsets but I gave up on medications. Nothing that I tried helped. I have just been living day to day. I have found that eating small amounts helps with the bloating and stomach pain. Noticed that some foods effect me more than others too.
At times I can go a few days without too much discomfort and other times I may feel awful for a few days straight. Anyone else experience this too???

hi my name is bridgette i am 47 years old with an ileostomy through slow transit, GP and inflamitory bowel condition as well as proctitus. i was diagnosed 15yr ago and had a colostomy in the first instance, followed very quickly by a total collectomy and ileostomy. over the years i have had surgery after surgery for prolapses and obstructions. i suffer severe vomitting which results in dehydration and malabsortion. i also have an incissional hernia. at the moment i take durogesic patches and lozenges for the constant pain as well as motilium, stemital and zofran for the sickness and lanzaprozol for the exess acid. my surgeon has now told me that i have to have the hernia and stoma repaired and my back passage removed which as you know is a big op. the illness is driving me up the wall, i now find that i am unable to leave the house for prolonged periods due to all of the above. the illness is now taking over my life until august of last year i was managing to work full time as a nurse. now i am at my witts end with it all and scared stiff as to what happens next. have been told that the pacemaker would maybe help the GP but because of the slow transit bowel is probably not suitable option. can anyone suggest any other meds or anything that may help me get my life back to some semblance of normality. heres hoping someone out there can help xxxxxxxxxxxxxx