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Janny1970 is
Hates Hernia's & Hospital Food
About Me:
Female, Middx - United Kingdom
I'm in a wheelchair and was born with Cerebral Palsy. I have a great life and a wonderful 12 yr old.
My Cp never stops me, although 8 yrs ago I started to have stomach pr
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Family & Friends, music-caregiving, dogs, computers  
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My Life Living With Cerebral Palsy

Mar 17, 2008 09:29PM - 3 comments

I was born at 28 weeks in 1970.
My birth weight was 21bs....(bag of sugar so I was told when growing up)

From what I have been told that the dr's painted a dim picture of my life in years to come.
Well they were wrong, I learn't to walk on a rollator and then on to sticks....ran around with the rest of the kids on my road. I rode my bike with stableizers and went from strength to strength. Falling over was a part of my life and I carried on that way until the age of 11. Then I started to get this dreadful pain in my knee.
It turned out that I had developed 'House Maids Knee'.
I had to then go into a wheelchair so that they could treat the swelling and with the help of physio it got better...but for me the months that I'd spent in the chair meant that I could have more fun and do more, without the fear of falling over and the pain. I was now heading well into my teens and hitting the floor with a thump was getting harder to shrug off.
I stayed in my wheelchair and tried to balance the both staying mobile and 'living a life' that was right for me.
My parents never wrapped me in cotton wool and treated me as disabled. They made me learn to climb the stairs and things like that. They pushed me when I needed to be pushed to learn something...ie sitting up or putting my own shoes on brushing my hair etc.
I still cant sit up with anything behind me, but I found my own way to put my shoes on....I went on to look after children and then in 1996 I gave birth to my daughter.
I had an 8 hr labour and lots of birth partners (oh and music) which helped because the people that I chose know me and what I can do and what I cant. In the end I pushed out my daughter to the screams of pushhhhhhh....lol it was fantastic and I would do it all again. When I looked around the room other drs and midwives had snuck into the room to see what all the noise was about....I'm glad they did because hopefully on that night they learnt that if there is a will there is a way!!



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by highlymotivated, Mar 18, 2008 11:14PM
What a remarkable woman you are!  My som is only 20 months old with spastic quad and already I know some of the hurdles he will have to overcome but what you have achieved is a true sign of your spirit and strength, oh and I must commend your parents as I know how much work goes into even the smallest of achievments!

by Janny1970, Mar 19, 2008 03:21AM
I bet your son is just gorgeous too!!

Thank you for your lovely and kind words, I do feel proud....more proud of my own daughter in fact because she is growing into a lovely young girl - with manners and a kind heart xx



by highlymotivated, Mar 20, 2008 06:42AM
Hi Janny, was wondering if you had any advice to give me regarding my son, sometimes when someone has already gone through many years with cp they have a wonderful insight into what may really help, was there any one therapy that stood out ? Hope all is well

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