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Hypothyroid, no period, weight gain, sick of doctors...etc

Mar 19, 2008 - 20 comments
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no period

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no periods

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Hypothyroid

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negative

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Weight

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Gain

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Not pregnant



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I have been diagnosed with hypothyroid within the last year, my grandma on my fathers side had it as well. I take 50mcg Synthroid. I was having the symptoms for about a year before anyone figured out why I was gaining so much weight quickly and felt so bad all the time.. I have gained a total of 80lbs and still going steady unfortunately...and I don't eat bad at all. I'm now up to 205lbs vs the 125lbs I was in April of 2007. My numbers at last months check were fine, but I'm still gaining weight. Lately I have been nauseated constantly, like a sick feeling maybe too much acid in my stomach, its only if I have to get up in the morning and it goes away after I take a nap. I have pain in my chest as well, it starts in my chest near my sternum and radiates to my back shoulder and feels like I have something stuck in my throat that I cant swallow. Usually my jaw hurts along with it and the pain comes on randomly and has been going on before I even started taking Synthroid. I have been on Prevacid, it didn't work, then they had me take Metoclopramide 10mg that gave me diarrhea and made me tired all the time so I got taken off that and they put me on Aciphex.20mg I've been on that almost a month now, and its working a little on the nausea in the mornings, but does nothing for the pains. Now my periods have stopped, and I'm not pregnant, my Gynecologist already tested me.I'm also getting acne which I never get zits and I have 4 right now, and I have little black course hairs growing in random places, like on my nose, upper lip, cheek, and belly button. So I have been plucking and waxing like a mad woman.... Its been 4 months since I have gotten my period, my Gynecologist it seems is the only doctor willing to help, she had some blood work done to check my hormones I (no results yet) and then she wants to do an ultrasound on my ovaries. When I went in for my appointment my blood pressure was higher than usual, it actually has been higher the last 2 visits which is odd. She also is having me write down everything I eat because she does not believe me that I am not overeating. Since I have been writing down what I eat I have noticed that I only consume 1200 calories per day and I have been taking into consideration the amount that is fat cal and not much of it is except from peanut butter. I even went so far as to bring in a diagram and a list of my symptoms, dates and times I get the pain and I give it to the doctors and they act like they can help then say its in my head, I have had and EDG and everything was normal, the GI doctor said I just have a lazy stomach. I've had an ultrasound done on my upper right quad to check my gull bladder and I had a 3mm polyp that the doctor said is nothing to be concerned about. I have had probably every blood test imaginable over the last year. I've also been on medication for panic attacks and I still had the pain in my chest. Does anyone know what the pain is and why my periods have stopped? Or have any ideas or similar situations?

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by angie403, Mar 19, 2008
I totally hear you, but, iv been diagnosed with Hashimosis Thyroiditis, What the???? The more I research, the more I see this peticular thyroid disorder is in the i dont know shall we call it remission stage, is it going to be Hypo or Hyper my symptoms are a bit of both, I have lost weight but before this all came out Iv been treated for ADD Im currently on 50 mg of adderall, Woah, I know, and Lunesta, and Zoloft, soooooo, are we treating the core of my issues, who knows, since the blood testsTSH comes back fine, 3.06 which is..I guess normal, oh did I mention I also had an Ultrasound on my neck, which ultimitly shows the good ol' Goiter, and the reason my neck, chest is sooooo tight, I thought I was having panic attacks!!! Now, he (my hardly speaking English Doc) decides I need a more In-debth blood test, Ya think!!!! Im stessed, Im freakin' tired, moody, anxiety ridden, depressed, and a mother of 4 boys, Its soooo frustrating huh!!!

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by 898, Mar 19, 2008
when you were diagnosed with hypothyroidism, did the doctor tell you what caused you to become hypothyroid ? Or he just took the tests and put you on medication dose?
The fact that you are gaining weight can be either beacuse the dose is too small or the different medicine needed to be selected .Are you stopped the medicine due to the side effects?
You also need to use low fluoride toothpaste, and to stay away from the fumes emitted by new carpet, as the flame retardant as well as fluoride slows thyroid  down especially in young women.

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by ChristaMarie03, Mar 20, 2008
Thanks for taking an interest in my situation, in reply to 898's questions... I went to the doctor because my sister made me, she thought I could possibly be diabetic. When I went in for a checkup my blood sugar was high an I had not eaten anything, so as I was filling out the paperwork for my medical history my mother was helping me via phone and told me to put down that my grandmother on my fathers side was hypothyroid. So I put that down and the doctor tested for that and my thyroid levels were as he said extremely bad and he said "you have hypothyroid disease" and that I was not diabetic. He wrote me out a prescription and then I had to go back in for another test 2 months later and he said my numbers were fine. I told him all about the chest/jaw/back pains which have been going on before I was even on the synthroid and how when I get them it feels like theres something in my throat that I cant swallow and that it comes on randomly and he sent me in to get a ultrasound on my gull bladder, that was fine. Then, sent me to a GI doctor and he said I was fine and gave me some Ashaphex, I still get the pains. The doctor said its most likely a panic attack put me on some other meds and they didn't work so I quit that. This has been going on for almost a year now and all of a sudden my periods just stopped 4 months ago. So I go into the gyno and she did some blood work to check my hormone levels and also wants to do an ultrasound on my ovaries. I'm still gaining weight so she also is having me write down everything I eat because she does not believe me that I am not overeating. People at work are like jeez what the hell is going on... cuz I literally eat  better than anyone there. I never use condiments on my food cuz I like things "bland" so I can taste the real food, not some greasy processed ****...Even my salad is plain. I went from weighing 125lbs in April of 2007 to 205lbs as of the 17th of this month. My boyfriend's cholesterol and weight has been going down and my weight is going up and I'm the one that cooks we eat the same dang things and he dosn't work out at all. I even went so far as to bring in a diagram and a list of my symptoms, dates and times I get the pain and I give it to the doctors and they act like they can help then say its in my head.

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by ChristaMarie03, Mar 20, 2008
In reply to angie403's comment,

They keep telling me I am having panic attacks as well....and I have been on adderall and prozac... : ) I think they keep misdiagnosing us dysfunctional thryroid'ers because no one truly understands what is going on. I have no kids, but I have 2 small nieces that can be a handful so I understand how hard it would be to feel so crappy and have soo much on your plate...then go home and parent.

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by 898, Mar 20, 2008
Some food to minimize:"the following foods are considered goitrogenic: cabbage, broccoli, turnips, rutabaga, mustard greens, kale, spinach, Brussels sprouts, peaches, pears, strawberries, and radishes cauliflower, millet, and African cassava.
These foods should not be eaten in large quantities and generally not raw especially if you are on thyroid replacement hormones and still have a thyroid because they can negatively interact with your medication, nullifying its effects. Cooking seems to break down the enzymes enough to make the anti-thyroid effect a non-factor.(Thyroid about.com)


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by ChristaMarie03, Mar 21, 2008
hmm.... I eat cabbage, broccoli, spinach, brussels sprouts, peaches, pears, strawberries, radishes, and cauliflower regularly... Why does it have to be those foods...I love them :(

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by ChristaMarie03, Mar 21, 2008
I updated my journal to include all the information people were asking for. When I get my numbers I will post them as well.

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by 898, Mar 21, 2008
Some info may be helpful (in case the labs support the Hashimoto's thyroiditis):Autoimmune Thyroiditis Atttacks
In some cases, the thyroid becomes particularly inflamed, known as a thyroiditis attack. Dr. Steven Langer, author of the book Solved: The Riddle of Illness, refers to thyroiditis as like an "arthritis of the thyroid." He explains that just as arthritis attacks the joints with pain and inflammation, thyroiditis can mean pain and inflammation in the thyroid for some sufferers. And in particular, during a thyroiditis attack, common symptoms are anxiety, panic attacks, heart palpitations, swelling in the thyroid area, problems swallowing, and frequently, problems sleeping.
Dr. Langer suggests taking some calcium/magnesium, which are nutrients that have a sedative effect, along with a pain reliever to relieve inflammation -- buffered aspirin or ibuprofen [ but for people with GI bleeding the non aspirin altrnatives must be used!!] -- before you go to bed, this might help. He's found that this helps about two-thirds of his patients suffering from nighttime thyroiditis symptoms.
Reducing swelling is a key aspect of dealing with thyroiditis attacks, according to Dr. Langer. "Just as with arthritis, an anti-inflammatory pain reliever doesn't cure the problem, but it temporarily ameliorates the symptoms."


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by 898, Mar 21, 2008
Some more helpful info (which was kind of shocking  to me 5 years ago as I made my research about fluoride benefits to the dental health):
"Fluoride was given at low levels during the early to mid 20th century as an effective way of supressing thyroid function and treating hyperthyroidism"
Therefore it may be good idea for you to switch to the fluoride-free toothpaste.
Another recent study shows that:


"In the past, high doses of perchlorate were used to treat patients with hyperthyroidism, or excessive thyroid hormone production, but a few patients had serious adverse reactions, and the use of perchlorate in this manner was largely abandoned. More recently, patients with hyperthyroidism have been treated effectively and safely with moderate doses of perchlorate for up to two years. Perchlorate has been administered to healthy subjects in doses ranging from 0.007 mg/kg to 9.2 mg/kg per day with no changes in thyroid hormone production to suggest any adverse effect on thyroid function. On the basis of these and other studies, the committee concluded that a perchlorate dose of more than 0.4 mg/kg per day would be required to adversely affect thyroid hormone production and cause hypothyroidism. However, the dose required to cause hypothyroidism in pregnant women, infants, children, and people with low iodide intake or pre-existing thyroid dysfunction might be lower."
According to the media report, this chemical have been found in the drinking water.
To minimize exposure, the water users are suggested not to drink the water immediately but to let the water stand (30 seconds for 200 ml glass) before the drinking.

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by 898, Mar 21, 2008
Finally the last quote from Thyroid.com
Some studies have shown that selenium supplementation at the typically safe dose of 200 mcg per day can return elevated thyroid antibody levels to normal, or reduce them significantly, therefore warding off development of full autoimmune thyroid disease
So make sure that the thyroid lab will test for TPO antibodies.
Thats it! I am hoping that some this stuff can be handy depends of the thyroid lab outcome.
Thanks for reading!

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by ChristaMarie03, Mar 21, 2008
Yea I was directed by my dentist to use a fluoride mouth wash before bed every night... because when I was little I had such a high fever that it burned the enamel off my teeth.  I'm gunna quit that.

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by DLA, Mar 21, 2008
Will be waiting to hear what your thyroid levels are b/c I'd be willing to bet you are not down around 1.0 like you should be.  This will cause a lot of the symptoms like the weight gain, heart palps, nausea, etc.  That's why we call it hypohell.

Would ask for an ultrasound of your thyroid b/c it sounds like you have nodules or something there causing the choking feeling.  Bend your head back as far as you can and feel in the V of your collar bone and up just a couple of inches.  If you feel something sticking out there, bumps, or really hurts that would be a good sign there's something there.  Sometimes people looking at you or you looking in a mirror like that can see it.

PCOS goes along with autoimmune thyroid conditions.  Make sure they check all the antibody levels to see where they stand.  My guess is they are high.  The PCOS causes either no period--can also be caused by being hypo--or really bad periods.  Go figure.  Excessive hair growth on your face, abdomin, and thighs.  Can also be on chest and other places, but those are the worst.  Also causes bad cramping during period and bad PMS, that is if you're having one.

They can check for this with a trans-vaginal ultrasound.  Not the most pleasant thing in the world, but not the worst either.  Make sure if you are allergic to latex that you report this to the sonographer before the u/s!  VERY important detail.

If you have PCOS there is also a good possibility you are insulin resistant.  They also go hand in hand.  Make sure they check your insulin levels if you have PCOS.  The treatment for both of these is Metformin (Glucophage).  Since starting this I have lost almost 20 lbs in the last few months.  The hair growth has slowed tremendously, and the acne has cleared up.

Come to find out I had Type II diabetes.  Not a big shock given all my other health problems.  But if you are insulin resistant and get on meds soon enough for them you may never become diabetic.  Remember I said IF.  Not trying to make you worse than you are, just giving you the info.  ;-)

If you have any more questions I haven't answered you can message me again and I will be happy to help you in any way I can.

Dac

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by 898, Mar 23, 2008
This is very valuable rcommendation! Posted By  DLA:
"Would ask for an ultrasound of your thyroid b/c it sounds like you have nodules or something there causing the choking feeling.  Bend your head back as far as you can and feel in the V of your collar bone and up just a couple of inches.  If you feel something sticking out there, bumps, or really hurts that would be a good sign there's something there.  Sometimes people looking at you or you looking in a mirror like that can see it"
Having the light source at the side makes bumps etc easier to see.
"The presence of discomfort in the neck, jaw, or ear and dysphagia, hoarseness, or dyspnea can occur in patients with benign thyroid nodules, particularly in those with large multinodular goiters" from thyroid manager.com

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by mcjenn, Apr 17, 2008
Hi Christa,

I have never posted anything before, but came across this site when doing some research for myself...I too have hypthyroidism and have recently had half of my thryroid out due to a large goiter. There is alot of great information that people are posting but I wanted to suggest two things for you to research.  First, it really does sound like you need your synthroid increased, however you might ask your doctor about ARMOUR Thyroid. Some medical doctors dont try it because they are trained to stick to meds only and dont consider natural products. However I know of few people that were in your position and nothing really helped until they went to armour. My doctor wants to put me on the Amour thyroid this month, he highly recommends it, however different things affect people differently but it really wouldnt hurt to give it a shot.   http://www.armourthyroid.com/       http://thyroid.about.com/cs/thyroiddrugs/a/armour.htm

Another thing I just came upon myself is adding Organic Virgin Coconut Oil to my diet. I just started this today but with all the research I have done, it has GREAT benefits to those of us with Hypothyroidism!!!  http://products.mercola.com/coconut-oil/ Along with Dr. Mercola, there is alot of great research out there that proves the health benefits of it.

I certainly hope you are able to get things figured out.  I find myself getting really frustrated (angry) when I read about people being put on all kinds of meds for symptoms when all the doctors are doing are playing a guessing game. Knowing I had a lump on my thyroid, the first doctors at BAYLOR wanted to treat me for depression instead of checking into my thryoid condition. Even still my "levels" always came out in the "normal range"...they are just now figuring out that the test is not sensative enough.  I wish you better health soon!

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by shanticussans, May 14, 2008
hi i just wanted to say i am having a lot of the same symptoms...im so scared at the i have had these probs for about 10 years...not been able to swallow,panic attacks,the feeling of having something in my neck not always there but sometimes,i also have not had a period since jan...thought it could have been cause i came of the pill that i was using for acne and hair growth,but reading this looks as tho they were simptoms of my hypothyroid,my recent thing is waking up in the night feeling like im suffocating i find it hard to lie on my back too this is so scary and i dont know what to do,i have also been gaining weight or not loosing weight,even tho im swimming ,jogging cycling and on a very low fat diet given to me my the doctors,doctor has also prescribed me with xenical (help break down the fat in the meal)still not having much luck,if anyone knows why im having these feelings in the night please let me know i dont think its panick attacks as i have suffered them a long time and seem to have it under control but never have i had this sleeping proplem before...

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by ashley189, May 14, 2008
To: ChristaMarie03
I was diagnosed with Hashimotos in Oct. 2007. I also stopped having periods in March 2007. Long story short-last month my thyroid quiet working completely because of the Hashimotos and now I am hypo. I take 100  mcg of Levothyroxine. I am 25 and my husband and I have been ttc for the past year so I was referred to a fertility doctor and had a laproscopic surgery in Jan. 08. It showed some cysts/follicles on my ovaries. Today I went to a Reproductive Endocrinologist and she diagnosed me with PCOS (polycystic ovarian syndrome). My symptoms were no periods, some acne (which I also NEVER had before), some abnormal hair growth (a couple on my chin, upper lip). I was 115 pounds in March 07 and now I am 127. I know it is not a huge increase but it is still not normal because I eat good and exercise daily. She put me on a diabetes drug today called glucophage and I can only have 100 grams of carbs a day, little to no sweets, and no white or processed foods. I have had several vaginal ultrasounds and that is how they see the cysts/follicles. I would recommend having one. They are helpful in diagnosing PCOS or just anything that could be messing up your periods. What do your TSH levels say? Mine were normal for about 8 months before they went to hypo. My TSH was 3 in Jan. 08 and last month it was 66.97. You need to demand they check you for PCOS at least. Many of your symptoms sound similar to mine. I know it is hard, but do not give up. You really want to get this taken care of before you decide to have kids because then it becomes a whole new set of problems-which is what I am experiencing right now! You need to find a doctor who will listen to you, because what you are going through is NOT normal and you should not have to go through it. Let me know if you have any questions. I hope this helps!
Ashley

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by nichole629, May 16, 2008
Hi, I would like to hear a follow up on your condition.  I have very similar symptoms.  It started when I was about 24.  I suddenly got a period for 5 month with no relief.  My first doc thought I was having a miscarriage but I knew I wasn't pregnant - no sex. Doc# 2 put me on the 'magic' birth control pill to regulate my hormones.  I tried it for 6 weeks and expierienced heavier bleeding.  When the bleeding finally stoped I had a very tender abdomin, nausa, vomiting, dizziness, fatigue, aching and I would go months with out a period then have a horrible one.  Doc # 3 interviewed me (not examined) and perscribed saraphin.  Finally Doc #4  wanted  me on birth control (I said no I wanted to find the root of my problem) and she was willing to try other things.  I had ultrasounds, and a laperoscopy, nothing showed up she suggested I watch my diet and reccomended me to another doc. Doc # 5 ran a whole pannel of blood tests and noted that my thyroid was enlarged but the test came back normal.  She sent me to a ruhmatologist for a high ANA test.  I was treated to a "lupus like disease"  and didn't feel any better.  I quit my med and all the docs.  3 mo later I got pregnant and felt wonderful (except for the morning sickness) almost right away.  I felt good for about a year after I had my son then the symptoms slowly crept back.  I started noticing that my thyroid would swell up just before I got my period and would fluctuate.  I don't know if I delt better with the sysmptoms after having them for so long or if they never came back as bad but I just lived with it.  My son is now 5 and I am experiencing pain in my neck now and the sysmtoms are getting alot worse.  I am reluctanly going back to the doctor.  I think it anxiety of having them look at me like I'm crazy.  But my fist visit was good.  I've already had the blood tests and an ultrasound but I'm waiting on results.  I also have gained about 50ish pounds.  Hope to hear how you are doing.

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by Tealpenguin326, Nov 15, 2008
You sound like the posterchild for Polycystic Ovary Disease! Common symptoms include weight gain, excessive hair growth, acne, and loss of period.

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by DrInternet, Mar 13, 2010
Hello.... check out cushing disease....cushing syndrome..It is rare and mimicks some of these symptoms..and it is fatal if not treated....some of these sound like adrenal issues...do the research and go to an endocrinologist...they spealize in this stuff... I am not a medical doctor I just play one on the internet :) Seriously check out what I said..

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by bec663, Jul 09, 2010
i think Tealpenguin326 is right i know someone with Polycystic Ovary Disease and they go through all the same symptoms , no periods, weight gain facial hair. that would be the best to be checked for. good luck!

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