Medication

Mar 09, 2009 - 4 comments
Tags:

medications

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medication

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Migraines

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Migraine

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Pain

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worry

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head

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Neck

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Back pain

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Headache

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pain tracker

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Advil

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hydrpmorphone

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nsaids

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triptans

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triptan

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self harm

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acupressure

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Topamax



I had to use so much medication today...

It's hard. It's difficult. I never really know what to do. If I take medication when I hurt, the doctors start talking about the possibility of rebound headaches and medication overuse. If I don't take the medication when I hurt, the doctors scold me and start talking about pain cycles and ask me if I "like pain" and act like I'm stupid or something. It gets really confusing. So... it's this constant balancing act of trying to figure out when to take medication for acute pain and when not to take medication for acute pain.

See, the problem is I hurt almost daily. And, I get migraines almost daily. So... that means I'm taking pain killers almost daily. And... if you're taking pain killers daily, you can start getting rebound headaches. It's less likely with medications like triptans than it is with medications like advil... but still, there is that worry.

Also, I was one of those "anti-drug" kids. A total narc. I'm still a prude. A total square. I am the squarest of all of my friends. I don't drink. I don't smoke. I haven't ever done street drugs like acid or mushrooms or "e" or coke or anything that I've seen tons of people do at parties. And, I have absolutely no interest in ever trying anything like that.

And my interest in trying street drugs has only lessened, if that's even possible considering how absolutely against them I was prior, after having to take medication and having bad reactions sometimes. Like the time I took over-the-counter back pain medication (yeah, over-the-counter... I react pretty strongly to medications) and started to hallucinate. Or, the time they gave me 8mg of hydromorphone at the hospital instead of the regular 2mg-4mg and I thought the doctors were invisible and that I was under water. That wasn't cool... at all. That was scary and horrible. I have never felt more physically disgusting. It was worse than the worst flu ever.

In fact, after having to take medications... I don't really understand why people would take medication for fun. I totally understand that a lot of people who use illicit drugs are self-medicating.... I have self-medicated in the past before when I have been in absolute extreme amounts of pain before (semi-suicide attempts to escape the intense physical pain). So, I do totally understand that. Also, I live in a province that shut down the mental health care system so now we have the worst drug problem in Canada because a huge number of people who need mental health care are self-medicating... so, when you live in my city, it's hard not to understand that sort of illicit-drug use.

BUT! I can't understand the type of drug use that a lot of my peers are into. The kind just for "fun". That has never made sense to me and once I actually had experience with medication thanks to these horrible stupid migraines... I understood the idea of drugs being fun even less. There really isn't anything fun about drugs at all. Sometimes they take the pain away and don't do anything else. Sometimes they don't take the pain away and don't do anything else. And sometimes they react badly and you see things you shouldn't or feel things you shouldn't and that is scary as hell and the grossest feeling in the whole world.

But. With all that said. I know that it's possible to become addicted to some of the pain medications I take. So, sometimes I don't take them until I'm sobbing. Like today.

And, sometimes the pain is so bad that I have to take a lot of medication... like today.

I took two doses of triptans (you can only ever take two a day).

Three hydromorphone. First dose worked (as in took the edge off, but didn't take all the headache away) then wore off and I was sobbing again. Second dose did absolutely nothing and I was sobbing for hours. That's when I took the other triptan and waited.

Then an advil. I try not to take advil. The last neurologist before my current one (he was the meanest rudest man I have ever met) made me feel like a drug addict for taking advil and told me my headaches were all my fault because I took advil. So, I hardly ever take advil anymore because I am so afraid that maybe he was some how right even though my GP told me that he sounded very odd and although he had a point about rebound headaches and medication overuse everything he said to me was WRONG WRONG WRONG and my mom told me he was the meanest doctor she'd ever met and a total jerk and was WRONG WRONG WRONG and my counselor told me he was a total jerk and WRONG WRONG WRONG and my current neurologist told me he had a point about rebound headaches and medication overuse but he totally over-reacted and I could still use advil if I needed to. But, it doesn't matter that my GP, mom, counselor and current neurologist all say he was wrong and a jerk. That man scarred me for life and now advil scares the **** out of me.

But. I was sobbing and starting to think about self harm. And, an advil was better than another hydromorphone as far as being worried about being a drug addict like the crazy neurologist accused me of being for taking advil.  

I don't know why self harm seems like a good idea when one is in pain. It makes no sense at all. I think I just get desperate and start grasping at straws and totally insane ideas like cutting out the part of my head that hurts or sticking needles into my head where the pain is starts actually sounding like a good idea.

Anyway. The advil didn't work. At all.

Mom freaked out when she saw me going for another advil because I had 2 aspirin patches on my neck and back where the trigger areas hurt. I hadn't really thought about that. I'd used about 6 of those in total today. She told me that if I took another advil I'd totally be overdosing on NSAIDS and could DIE. (Apparently a girl did die from using 8 aspirin patches at once... although, I wasn't using them all at once, it's okay to use 2 at a time... and you can use as many as you want in a day I think... but... still, mom totally had a point... too many NSAIDS in my system would equal a rebound headache.)

So. I finally took my third hydromorphone for the night.

Mom did acupressure on my feet until the third hydromorphone kicked in. Mom is an angel.

It took about half an hour but finally I stopped thinking that I might have to go to the hospital.

Then it took another half an hour for the pain to get down to that dull background annoyance it's usually at.

Anyway. My doctor prescribed something to replace the hydromorphone. He said it wasn't addictive or something? Or at least, much less so. I pick up that prescription tomorrow. So... no more hydromorphone starting tomorrow. We'll see how the new medication works. Who knows... maybe it'll work better!

Oh yeah... and today was my second day on 125mg of topamax as opposed to 100mg... we'll see how it works... trying to get up to 150mg... if there is no improvement... back down to 100mg... and then I guess we'll try a new preventative medication? Sigh.

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by pittrice, Mar 10, 2009
Advil is useless against migraines so don't take it in place of medicine that works. People taking medication for pain are not drug addicts. They are using medicine to control pain. It is definitely good to try to use meds that are not addictive but if they do not work then there is no sense in using them. There is also no sense in taking medication that makes you sick like a lot of migraine medicines do. I suffered from migraines for 25 years. I am now migraine free since about 10 years and I still find it to be a miracle. I went to the Institute of Complimentary Medicine in Seattle on Broadway and saw DR. Stretch. She prescribed taking one 200 mg.Chromium Picolinate tab before each meal, three times a day, regularly spaced time wise. She recommended taking a brand that had strict controls, not the cheaper brands and she was right because the cheaper ones didn't work. It seems ridiculous but my migraines stopped. They only came back if I missed a dose. I took it for five years and then I stopped to see what would happen and they never came back again. Ten years later I am still migraine free. Migraines ruined my life. I could not adapt the fact that I would get them so I resisted them. I had migraine hangovers for two days after one. Sometimes I would get them every day, other times I would get them once or twice a month. No one understands how painful they are or how much they ruin you life that doesn't get them. Chromium is said to be a supplement that a vast majority of people are lacking in their diet. Some people use it for weight control- it never really did anything for my weight but it did seem to control my blood sugar so that I did not have highs and lows in it. I never had any side effects from it at all and this was an amazing relief after the horrible migrain meds I was taking that made me feel as sick, but in a different way, than if I just let myself live in agony during the migraine. No matter how much ibuprofen I ever tried, it never did anything to help me.
Let yourself let go of all of the horrible bad doctor stuff. There are mean people in this world and some of them are doctors and they do and say horrible things that traumatize an already traumatized patient. You need to be very honest with yourself and only allow yourself to see a doctor who you feel comfortable with and who has empathy for you and wants to heal you. You do not need the stress of being around horrible people. I have had similiar experiences and it leaves you with a sort of post-traumatic stress.
Also, remember that the migraines are not your fault. You don't make them come. You don't know why you get them- neither do the doctors. They are complicating things in  a horrible way by making you feel that it is your fault and that you are addicted to pain. Accept your condition- do not fight it- fighting it uses a lot of your energy in unproductive ways. use your energy to keep working towards finding a solution.
Hopefully I have said something that is helpful to you- I hate to see someone suffer like I did for so long- in the prime of their life. It is so difficult.Keep talking to your doctor to help them understand what works and what doesn't. There are a lot of medicines out there and you can surely find the one for you.
I wish you the best!

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by marileew, Mar 10, 2009
Thank you so much for your note!! The stuff you said was very reassuring. It's good to hear this stuff... especially from someone who understands first hand what I'm going through.

Also, I am totally going to look into this Chromium Picolinate stuff. I have never heard of it at all! I'm currently taking magnesium and B2 because those are the common things that are suggested... but, yeah, this is the first time I've heard the term chromium picolinate even not related to migraine stuff. So, I am going to start looking into this today. Thank you very much for this tip!!

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by lloyd0307, Mar 10, 2009
I too feel for you!  With having the same types of headaches DAILY for over 20 years, and everyone looking at you like you are crazy, and that you have 'another headache'.  I have found the new medicine Treximet to work wonderful to kick the really bad headaches.  It works better than Imitrex, Relpac, and Maxalt. Have you tried that? See if your doctor can give you a sample?
Is your doctor looking at doing surgery on your Chiari Malformation?
I am having my Decompression Surgery tomorrow, and am hoping that this will be my answer to the years of headaches, and years of medicine taking.
Good Luck to you . . .and stay strong!


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by halbashes, Mar 11, 2009
I hope you feel better soon!  Also too, I hope you will soon find something to take away your headaches.

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