If anyone can understand...

Mar 10, 2009 - 4 comments

If anyone can understand how to interpret my brain MRI, I would appreciate comments.  I think I described my headache in my previous journal entry, and I posted a couple of my MRI images in my pictures section.  My appointment with the new Neurologist is still a month away.

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by marileew, Mar 11, 2009
Did they not also give you a write up with the images?

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by marileew, Mar 11, 2009
Oh... and I don't understand the MRI images at all because I'm not a doctor or anything... and also I totally probably don't understand your symptoms either because I'm not a doctor... but your headaches really really sounds like ictal headaches what with the severity and the seizure activity. And I think that ictal headaches are often misdiagnosed as cluster headaches, which your headaches also similarly sound like... because of the severity and the restlessness... but, they probably aren't, because of the seizure activity and all.

Mind you... when did the seizure activity start? Did it start prior to medication or after you started preventative medication for headaches/pain. A lot of preventative headache/pain medication can actually causes seizures... so the seizures may in fact be a red herring. But... probably only if they started after the headache/pain medication. I know that my doctor is always warning me about seizures and to watch out for seizures with almost everything he prescribes for my headaches, be it for preventative or acute pain.

And... so, then if you took the seizures out of the picture then they totally sound like cluster headaches. Unless they are very very severe migraines. In which case, my very very severe migraines cause me to pace and not be able to sit still, and I don't get cluster headaches, mine are for sure migraines. And, I think that a migraine aura can sometimes look like a seizure.

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by halbashes, Mar 11, 2009
Yes, but I will like some different opinions.  They were interpreted as normal.

I've had the headaches since June, thankfully, they aren't constant.  The seizures started a couple of months before, but I am not certain if they are related.  Though when the most severe headaches occur, the seizures come with it.

The pain is in the central back part of my head, and is worse if I cough or jump.  I had two head CT's that were also normal.  My EEG was only mildly abnormal, but that could be explained by my autism.

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by halbashes, Mar 11, 2009
My seizures were probably caused from a head injury.  I have Dysautonomia, which causes constant fainting.  I head my head all the time, and have had at least five mild concussions that I know of.

The seizures started before both of the preventative medications I've tried.

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