No MS, but is it Lyme disease
Mar 27, 2008 11:40AM
- 1 comments
Had my appointment with the neurologist on March 24, 2008. Discussed the results of my MRI and neurological tests. Neurologist does not think I have MS and agreed to test for Lyme disease. Said the MRI showed that the arthritis in my neck is worse. Neurologist asked if it was giving me much pain and it isn't right now. I forgot to ask about whether dysautonomia could be the cause of these problems, like the IST and migrating pain in SI, hip bursa, and knee.
I hope to goodness that your testing for Lyme is the Western Blot and not the ELISA. The ELISA is gradually being recognized as having little value, particularly for neurological manifestations, and it was never designed specifically for Lyme. As an apparent recognition of this, the 2008 CDC Lyme case definition (http:///www.cdc.gov/ncphi/disss/nndss/casedef/lyme_disease_2008.htm) drops the "recommendation" for the 2 tiered ELISA/WB and includes the WB for IgM (do both) as one of the now 3 choices for laboratory confirmation. Since 1990, the CDC recommended only the 2 tiered approach, so this is huge. The AG in CT just sued the IDSA to get them to drop this ELISA requirement and sent them back to the drawing boards. Of course, CDC surveillance standards should have nothing to do with diagnosis, but doctors have nothing else so use them anyway, and IDSA has been accused of having pecuniary interests in ELISA use.
I went through the whole MS dance last year and would have been diagnosed with MS but have only one lesion. Please read my Lyme blogs on Lymeblog.com (Kansas denies). If you are in Douglas County, the site of my infection, you are in one of the most endemic counties in the state, as well as Leavenworth.
I hope you get aggressive on treating this. My hip bursa (left, since 2005) is way better after the latest antibiotics.
I went through the whole MS dance last year and would have been diagnosed with MS but have only one lesion. Please read my Lyme blogs on Lymeblog.com (Kansas denies). If you are in Douglas County, the site of my infection, you are in one of the most endemic counties in the state, as well as Leavenworth.
I hope you get aggressive on treating this. My hip bursa (left, since 2005) is way better after the latest antibiotics.
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