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My war with IST/SVT and a birth defect in my heart.

May 05, 2013 - 3 comments
Tags:

IST

,

Stellate Ganglion Nerve block

,

Sinus Node Modification

,

pacemaker



I'm Jenny. I'm 35. I'm married and I have two kids and I have heart disease. I have been fighting with Inappropriate Sinus Tachycardia since I was about 20. I decided this year to do everything possible to make myself well. So I did every surgery they had available. I had no other choice. My heartrate was getting to 200 while I was asleep.  I was unable to walk, unable to move my arms, I couldn't take care of my kids or live a normal life. Sometimes in these times of struggle you get to see what you are really made of!

I had 4 Stellate Ganglion Nerve Blocks for tachycardia, Then an ablation for an AVNRT, then open heart ablation of the sinus node, then a pacemaker.  I'm finally done and it feels great!!!

I've done it all and I'm doing amazing.  I no longer feel my heart beating constantly.  We beat the Inappropriate Sinus tachycardia!  I don't have it anymore after my open heart/sinus node modification! I was passing out but they fixed that too with a pacemaker.  I also was born with myocardial bridging in my heart which made me pass out often!  But not anymore. The pacemaker took care of that too!

There is hope.  Sometimes you have to trust that things will be okay.  Be strong and keep fighting.  Because getting your life back is completely worth it.  Pain is temporary.

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by Jannie411, May 06, 2013
So glad to hear you are doing so well!  I completely agree with your last paragraph.  Take care.  Jannie411

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by dolphin8808, May 08, 2013
Wow how awesome is this???  I am so very very happy and thrilled for you!! Life is good my friend and congrats! :)

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by Jen34IST, May 08, 2013
Thanks! It's been a long 13 months.  I had 9 procedures in that period of time!  So I'm always rehabbing from surgery.  But I'm finally done.  I just wanted to post to let everyone know they have hope too.  Sometimes you don't know what will happen but you have to jump in and try.  My brother died of a heart attack at 36. (He didn't have IST, he had a clogged LAD) I'm almost the age he was when he died. So that's why I worked so hard this year to get myself healthy.  I was wearing my heart out with it beating so fast and my kids weren't safe with me because I couldn't catch them if my little boy ran from me in a parking lot.  It was terrifying.  But it's all in the past now!


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